I have moved over to WhittereronAutism.com. Please follow the link to find me there. Hope to see you after the jump! :)

Saturday, November 08, 2008

As dull as ditch water

I terminate my scientifically conducted discrete trial early, due to a distinct lack of co-operation by the subject. It’s one of those prompt and response experiments. No matter what I try, it makes no difference. My daughter spins her wheels and hovers, observant but without interference. For now he is syllable free, silent. I, on the other hand, am exhausted, worn down and defeated. I’ve had just about enough of these glass half full, nauseatingly optimistic, count your blessings types……I should know better of course.

I remember sitting in on a speech therapy session, when silence descended. When silence descended I was like a squirrel on the edge of my branch, twitching, waiting to witness the magic trick, to learn what the magic trick was, ready to implement the magic trick myself. After 45 minutes of prompting, jokes, cuing, distracting, silliness and encouragement, we left, still in silence, without the knowledge of the magic trick. The magic trick did not exist. It was a salutary lesson, but only for me.

I let him drift off on his own so that I complete my notes on yet another failed campaign and 32 minutes of mute. 32 minutes of mime and mimic. Sequencing and prepositions are a trial for us all. I add my notes to the A4 arch lever Ring binder where I house many similar aborted or failed experiments spanning copious years of defeat. I return the binder to the cupboard with it’s fellows, all equally as shoddy. As I shut the door I hear odd noises from the spare bedroom. I step closer to ear wig as I need to know who is talking, and who is talking about what.

“O.k.! Yah listin?” she bellows in earnest. “So when I poke here, then you fart. Got it! Yah ready!” I crack open the door, just a sliver so that see what my ears are reluctant to comprehend. I catch him nodding his head with great enthusiasm. She prods the centre of his forehead, ringing doorbell style. He responds immediately with raspberry noises from his mouth. They both fall about on the carpet cackling, “agin, agin, agin!” he pleads as he wipes away the tears.

Now why didn’t I think of that?

Friday, November 07, 2008

SOOC - Picts, scots, angles and Britons

Slurping Life












[From a few weeks back]

I drip around the house nursing my cold and a handful of tissues, a nose like Rudolph and skin like red sandpaper. My children are well, all of them, with far too much energy.

I print out ten pages of Polygons so that we can address a homework problem in a calm and value free manner, both regular and irregular. I restrict my other duties to sterilizing anything that they might touch. Purell soap and Clorox wipes vie for supremacy. I refuse to permit my eldest daughter to take Britons’ germs to Australia or contaminate the other passengers on the 23 hour flight.

My son, the filthy one, is the source of great irritation as he dresses and undresses, many, many times. Gradually, he tries on every clothing combination available in his wardrobe. My other son is less irritating but far noisier as he chants “picta dey, picta dey, picta dey,” in a ceaseless mantra.

Fortunately my ears are as clogged as my nose and brain. Everything is irritating as I grump my way through the day, grouchy and crotchety, unlike other [LINK TO JACK RILEY] more sanguine mothers. Through the fug of my fog it occurs to me that his behaviour is unusual. He has never shown any interest in clothes, clothing or fashion, whilst his little brother has an entirely different set of motivations that perseverate upon texture.

I decide to investigate further.

“What are you doing dear?” I watch him pose before the mirror as he flips between nonchalant, cool and strut. He has each of them down to a tee. His sister steps across to adjust his collar and cuffs.
“What are you doing dear?”
“Oh I’m just tidying him up some. There you go! Perfect!” Three small people look at me expectantly.

Joint attention rules! But I am still clueless.
“Um…..very nice dear. You do look smart, er…..sharp……er…..hansom?”
“He looks awesome Mom.”
“Indeed, awesomely awesome I’m sure.”
“Perfect for Picture Day!”
“Ah!”


This is what happens to foolish parents who persist in typecasting their children despite the mountainous evidence to the contrary.












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Thursday, November 06, 2008

Picky eaters, and then some!

Picky Eaters Club




Many parents share a common goal, something along the lines of, 'please let my child reach the age of majority and live a happy healthy life.'

Others, more ambitious parents, a few of them, focus on the "details."


"Food and fun"


If ever there were two words that don’t go together, then these two would be my first choice. I should have the picky eater logo tattooed on my forehead. I swear I have read every book ever published on the subject, or if not ‘swear’ as I have a tendency to exaggerate, then certainly a great many.

You see I am the mother of a neophobe, a person who eats less than 20 foods.

What does this mean?

Well……when did you last see a child [or adult?] who had a meltdown at the prospect of eating an ice-cream, or a chocolate chip cookie, or chocolate or candy……? Do those children exist? Yes, they surely do.

The first step towards helping your child expand their diet is to relinquish control. Control must be passed to the child without reservations, although hesitation and doubt is permitted.

The second step in any successful de-sensitization plan is to extinguish the connection between ‘food’ and ‘eating.’ This is where ‘food is fun’ comes into it’s own.

For many people ‘food’ is fearful because it has to be eaten. Therefore, if you do not have to eat it, there is the possibility of extracting fun. Once fun has been extracted, by fair means or foul, food is no longer the enemy. When food is no longer the enemy there is the hopeful possibility that additional consumption might become a reality.

I can see ‘doubt’ writ large, but I can promise you that this approach will help make meal times less traumatic. There may not be very much more eating, but less trauma is definitely worth fighting for.

So where to start?

This will depend upon your child and you are the one that knows them best.

I can catalogue an endless campaign of ways to play with your food, some that will be familiar and others that are a little more obscure, but the ability to touch the food with hands should never be under-estimated. The inability to hold a utensil can be put on the back burner.

Bear in mind that the food, whichever you choose, may look horrible, smell disgusting, feel abhorrent and sound revolting when it is cut or squished. This is because food involves ALL of our senses.

I could write more, several volumes in fact, but I shall leave you with a selection of photographs that suggest a few of the endless possibilities available to us and our children, on their journey to accepting that food is our friend and starvation must be staved.

First we learn to tolerate touching the food.



Although some are easier than others.




We have a jello theme here = dino rescue!



No it's not a disgusting vegetable it's a toothbrush.



It's one thing to touch it with a finger, quite another to hold it..... count to three before you chuck it!




It's the basic principle that counts.





It's one thing to hold jello, quite another to hold a genuine vegetable but we will generalize or bust.





Practice with something safe.






Is this real? No there's Nutella smeared on the other side, but we still make contact!





Apple bobbing in Lemonade, might just take the edge off.





Ultimate control, every neophobe should have at least one. This was probably the hardest step for me and the most important one for him because it gave him real control. A designated 'spit' bowl means that once the food is in his mouth, he is able to reject it. No-one will force him to swallow. The inside of our mouths, surely the most sensitive area, where a mouth ulcer the size of a pin head feels like an unexploded bomb. That first assault on those thousands of receptors is a challenge of taste, texture and temperature with every new food. With continued exposure, repetition, the new food loses it status as new, becomes more familiar and may eventually be eaten.





From 3 to 17 foods in four years.............




.........desensitization is a work in progress, the trick is to make the 'work' fun!



Addendum:-

My good pal "Kristina" from "Autism Vox" suggested we pass this on to any interested parties...........


Hi "Kristina,"

This is Josh Levy, Managing Editor of "Change.org," a social action blog network that just launched more than 12 blogs last month covering issues such as global warming, homelessness, and genocide. (You can see the full list here: "www.change.org"/causes).

I wanted to get in touch because we're preparing to launch an autism blog next month and I was hoping you might know of someone that would be good for the position.

We're looking for someone who is knowledgeable, passionate about the issue, and who can blog like a pro. The position is part-time and paid ($1000/mo).

I've pasted a job description below. I'd really appreciate it if you would consider forwarding it to anyone you think might be interested. We'd also love it if you would consider posting a short announcement on your blog; we're trying to reach out to as many people in the autism activism community as possible and I'm hoping this is something your readers might be interested in.

Thanks so much for the help!

Josh Levy
Managing Editor

Wednesday, November 05, 2008

Thursday 13 – easy green Thanksgiving décor


Thirteen Things about recycled Thanksgiving decor






Get the Thursday Thirteen code here!


The purpose of the meme is to get to know everyone who participates a little bit better every Thursday. Visiting fellow Thirteeners is encouraged! If you participate, leave the link to your Thirteen in others' comments. It’s easy, and fun! Trackbacks, pings, comment links accepted!







You will need:
One pumpkin
One empty, clean orange juice jug
Template
One overhead projector film
Washable pen
Sharpie
Scissors
Large piece of waster paper or newspaper
An exacto knife
A cleaver
Chopping board
Sandpaper
Feathers, glue and glitter of your choice
A captivating activity
A thankful of patience

Whilst it might be fun to do this craft with your children, due to the prevalence of lethal weapons, it may be better to prepare all the parts in advance for them to decorate and assemble.

1. Take a large piece of paper and outline a tail feather shape.


[this is last years with the feathers already attached which makes it easier to see]

Alternatively, make outlines of your children’s hands in advance to add the personal touch. You can use more than one tail/ hand print if your children and their hands are very small, as stumpy tailed turkeys are not popular.

2. Cut the ‘film’ to match, set aside to decorate with children.

3. Split the juice carton in two, vertically, with an exacto knife. Take care to keep the handle part separate to form the neck and head.



4. Cut the two side panels into wing shapes

5. Fashion a neck and head out of the handle hook.





6. Mark the ‘face’ with a sharpie or leave this step to a child that likes to draw faces.

7. Take the sandpaper and remove all sharp snags from the pieces.

8. Take the washable pen and mark four cuts on the pumpkin, neck and tail at the ‘front/back/ top.



9. Mark two wing cuts at a semi vertical angle.







10. Take the cleaver and cut into the markings.



11. Insert each piece to check whether you have a good fit so that smaller hands than yours can easily push the pieces into the holes. If not, take time to enlarge the holes now before their pieces are decorated. Remove all lethal weapons from the visual scene.

12. On completion, gather children into a large open area with all decorating supplies available in duplicate. Forewarn children that glue takes time to dry, that they are at stage one and that stage two, assembly, will be later. It is now essential to minimize the use of glue. Glue use is exponentially related to drying time. Put visual timer in prominent position out of the line of fire of escaping glue, to illustrate that the passage of time is indeed despicably slow.

13. After the decorating stage, dig out the captivating activity, otherwise known as the ‘kill time whilst glue dries’ activity. Do not attempt clean up at this time. This time must be devoted to the captivating activity in another room during the glue drying. Now you will discover whether your captivating activity time is closely matched to your glue drying time. Do not attempt to speed up the process by use of the microwave or a hairdryer, as both these options are deemed cruel and unusual punishment to turkeys.

After approximately 30 minutes, assuming that you gained control of glue usage earlier, the turkey parts should be dry enough to handle. You will now learn if your choice of ‘captivating alternative activity’ was sufficiently captivating or too captivating. You will already know if it was insufficiently captivating, as you will be doing your captivating activity alone. If your activity was too captivating your children will continue the new activity. On no account will they now leave that activity to return to the previous activity to complete the turkeys. On the 57th occasion that someone asks ‘why?’ resist the fowl urge to shout ‘because it’s fun!’

Time to wattle off and recharge the patience battery!




WindButton

Tuesday, November 04, 2008

Wordless Special Exposure Wednesday

5 Minutes for Special Needs










So tell me......how do you 'curl up with a good book?'




I do have some words over at my other site, "Alien in a foreign field" called "Omar can put a sock in it"




If you enjoy caption competitions and photographs, you may wish to nip along to"DJ Kirkby" over at "Chez Aspie" and test your brain power.

Sunday, November 02, 2008

Sunday - Perfect Post Award for October

Please scroll down for Magic Marker Best Shot Monday




The Original Perfect Post Awards 10.08


The perfect post award is hosted by Lindsay at "Suburban Turmoil" and Kimberley at "Petroville."





These days most people have at least heard of autism. The subject seems to be in the news media every day and there are always those stories of Autistic Savants with their staggeringly unique talents. Otherwise, the news tends to be of the ‘one off good time touchy feely’ type of story or the ‘gloom, doom and despondency’ woefulness that shoots fear into the hearts of the general public.

The every day kind of autism, doesn’t get quite as much attention as it is not considered ‘newsworthy.’ That said, there are any number of families all over the world who live with the day to day nature of special needs and autism. Most of these tales cover the tiny huge experiences that are of no great consequence to the world at large but are of pivotal significance to those in their orbit.

One such tiny huge tale was written by “NiksMom” over at “Maternal Instincts – Flying by the seat of my pants.” “NiksMom” isn’t whizzing around in her undies, but rather keeping it all together in her trousers, as illustrated by her posting called “Taking Root, Taking Wing,” for which she receives October’s Perfect Post award, in recognition of what most parents of special needs children attempt to achieve, hopeful growth and inspiration to others, I hope.


So don't be shy. Maybe during November you'll also read something that you might nominate for the Perfect Post Award =

The perfect post award is hosted by Lindsay at "Suburban Turmoil" and Kimberley at "Petroville."

Best shot Magic marker Monday -Find that scavenger



Hosted by "Tracy" at "Mother May I," but the photo-picture below will whizz you right there with one click.

Just call me snap happy.

red BSM Button











Once a year, we take our children to the school fund raiser. For those unfamiliar with the American system of public education, the wealthiest Country of the Western civilized nations usually falls short of funds to the tune of many thousands of dollars. The fund raisers, several throughout the year, serve to finance several programmes for the children to enjoy. Some support fringe benefits such as science camps, others add enrichment projects such as arts, music and sports.

Hence our family trots out in support of this event. Each year it becomes easier. This year we go in two shifts to accommodate those who desire to walk from dawn to dusk, and those would prefer to take a step or two in the right direction.

When the boys and I arrive, the public address system is audible two blocks away. The crowds have died down and hundreds of people move around the playing field in laps.

We are able to register and take care of paperwork in the open play ground, well staffed by cheerful, helpful volunteers. The boys are each handed a Walkathon T-shirt for the event, our first hurdle. Since we are the last to arrive, the only shirts left are the small size. Although they are both quite happy to be without clothes for a far higher percentage of time that then average child, they are both suddenly attacked by a blast of unexpected social decorum,

....“but……I cant be take my shirt off!”
“Yes you can. I’ll help you. Then we can put the Walkathon T-shirt on instead, then you’ll be the same as everyone else.”
“But……everyone will be seeing my….my…..my bare…..bareness!”
I beat the word ‘irony’ to the back of my brain and wrestle with shirts as both boys twist themselves about like corkscrews, their arms and legs wrapped around like elastic. It is a feigned and yet uncannily realistic rendition of truly false modesty. The screwed up facial expressions are overkill. On completion neither is particularly bothered by the new skin tight garment with bare midriff.

I edge them up onto the sports field and peer around for their dad and sister. I yell into my cell phone in an attempt to make contact. A pal taps me on the arm to communicate something officious and important. Both boys adopt this as their cue for take off. As they scamper away in opposite directions, my eyes follow them until they’re forced to focus snap back to my chum. Lost in the crowd in seconds.

Even though I can’t decipher any apart from the public address system, it seems like the best way to attempt contact. As I press ‘end call’ on my phone, I remember that he’s networked all the phones into our home phone answering system. Typical.

I seek out the usual hidey holes, those furthest distance from the hub bub, the toilets, the edge of the play ground, the play centre on the far field. Although they wear a distinctive shade of day glow yellow shirts, on this particular occasion, so does every other child in the school. I spot my elder son walking laps backwards to face the current object of his affections, a charming and lively fifth grader. I assume, or rather hope, that her feminine wiles will entertain him for the remainder of the lap and continue my quest for the little one.

Where on earth could he be?

By chance I find my daughter and husband, neither have seen him.

We are running out of options. “I wonder if he’s dashed back to the car to escape?” I mutter over the din of the microphone announcements. My elder son appears after completing his lap, still walking backwards but mercifully vertical. I pounce on him before he veers off, “have you seen your brother?” He points in the vague direction of……….nothing in particular. “Where dear?” We all strain our eyes to decipher, search the sea of bodies, whittle out the rogue when I hear a familiar voice come bellowing out over the public address system, “America rules! England stinks!”





Photobucket

Saturday, November 01, 2008

Daily Daub - Tactile Defensiveness























Friday, October 31, 2008

Left of centre and straight on til morning

Slurping Life






“What is that smell Maddy? Is it your perfume?”
“Yes. I put it on especially, as I knew you were coming.”
“Ah, no time for a shower then?”
“Hmm one of those days, you know me so well.”
“What’s it called?”
“I’m not sure. It’s some hooch my Mum gave me for Christmas.”
“Do you have the bottle?”
“Yes, but I’ve lost the cap and there isn’t a label.”
“Perhaps we could guess. I know it smells……..oddly familiar?”
“Nothing smells like the original on me. My mum used to wear Blue Grass. I loved it on her. She gave me some as a gift when I was a teenager. I thought I was sooo grown up, but after a few minutes there was this horrible stink. It’s didn’t agree with my body chemistry, smelled more like gnat’s piss.”
“Gnats piss, gnat’s piss, gnat’s piss.”
“Whoops!”
“Oh dear. He’s been so quiet I forgot he was there for a moment.”
“Likewise.”
“Not much gets past him does it! I know, how about we all think of a name for your Mummy’s perfume?’
“Hmm that’s a good idea? You guess first then?”
“Ooo let me think a moment Maddy….how about....... Maddy Mystique.”
“Ooo I like that. That one definitely gets my vote! Now lets see if I can think of anything better………Muck de Madeleine.”
“Not quite the essence we’re looking for.”
“What about you dear? Do you want to have a guess? Can you think of a name for my perfume?”
“Er……Hoochy Mamma.”
“!”




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Thursday, October 30, 2008

Happy Halloween

Please drool down for our ghoulish scheduled programme





From a wee while back






And a bit more recently





p.s. I learned today on the news, that the two most common Halloween costume choices in the US of A are 'A Vampire' and 'A Pirate' :- Horray! At last we are truly "commoners!"


p.p.s. Oopsie! Don't forget to pop along and visit "4 Green and Speckled Frogs" for their Pumpkin Patch Parade!

Garfield! A fiendish theif!




We drive home from school in a whirlpool of words.
“A banana has two uses, food and entertainment!” he chortles.

I am immediately aware that someone has stolen my child and replaced him with someone with verbal diarrhea. I turn to my daughter for clarification, “he’s been like that all day, since first thing, since assembly.”
He hangs out the window to shout at the traffic guard, “hey give me yur lollipop and I’ll lick it fur you!” I hit the automatic window button and try not to amputate his arms in the exercise.
“What happened in assembly?”
Popcorn, get yur popcorn here!
“He won the award thing, you know, ‘caught in the act of doing something good.’”
“Gosh! Did he…….that’s …….wonderful…….isn’t it?”
“Well it would have been.” I hardly dare ask, but I have to know, “what happened?”
“Well he goes roaring up onto the stage, to the Principal…….she gives him a certificate for a pizza party…”
“Oh no…..he hates pizza….”
The hardest thing in the world is John’s left over frozen pizza!” I swear he’s memorized every line in Garfield.
“Not a problem mom, he didn’t care…..”
“Didn’t care? He won a prize that he hated and he didn’t care?”
“No…..instead…..he starts doing like this victory dance thing, stomping all over the stage shouting ‘I’m the man, I’m the man, I’m the man,’ with all these hand movements like he’s some kinda rock star or something.”
“Gosh…..were you perhaps……a little embarrassed?”
“Nope. He was having a whale of a time, everyone was laughing……his teacher had to drag him off.”
“Oh dear…..”
I’m fat and lazy and I’m proud of that!
“Ever since……I saw him at recess…..and lunch recess……he’s been non-stop jokes….”
“Oh…..I wonder why……”
“It’s your fault mom.”
“It is?”
“He’s finally got the message.”
Seafood diets man! I see food, I eat food!
“What message?”
“The one you’ve been lecturing him about for months!”
“I’m gonna erase you! You are be gone forever!
“Lecture? Me?”
“Yeah, you know the one.”
“Which one?”
“Cut out the potty talk, the name callin and the teasin.”
“Ah, well that really has been out of hand lately, hasn’t it. That constant barrage of raspberry noises, burps and f …..well…….completely inappropriate.”
“He did say excuse me straight after though.”
“Quite mind numbing.”
“I know, but you said he should be positive not negative, tell jokes instead. Jokes are friendly, tothers like bullyin.”
“Hmm…… I see……I think?”
“So that was the final straw!”
“What was?”
You know what is a "diet" is, don't you? It's "die" with a "t," that's what it is!” I think he must have swallowed that Garfield book in the night.
“The movie you chose this week, coz you don’t want em watching too many cartoons, coz you want em to watch movies with real people in em……?”
“Ah…..I see what you mean.”
“What were you thinking mom?”
“I’m sure…..that…..well……”
“Dontcha see, he’s connected the dots! That ‘Dennis the Menace’ movie was the clincher, a serious error of judgment mom!”
Mom?” I turn to the chortler.
“Yes dear?”
“You are being my favourite adult woman in the whole wide world.”
“Oh…..well thank you so much for telling me dear.” I wonder if he’s still in joke mode?
Mom?
“Yes dear?”
“Sometimes life jus comes up and kisses you on the lips
.”
"!"

Another direct quote from Garfield!




He was completely silent the next day of course!

 
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