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Showing posts with label meltdowns. Show all posts
Showing posts with label meltdowns. Show all posts

Wednesday, October 24, 2007

Neither a Lender nor a Borrower be*























When he appears at nearly 10 o’clock on a Saturday morning, when we have already achieved steady state. They are all fed, clean and most importantly of all, dressed. Their father is not dressed, even though the long hand is seconds away from 10:00. A robe does not qualify for ‘dressed.’ Nor is he clean. He is already brewing his weekend headache due to caffeine withdrawal, but I am without mercy. I push a mug of black coffee in his bleary eyed direction, with verbal prompt, “there you go dear, that should help.”

I recall the chap in the restaurant the previous night. He sat at the counter with his pal enjoying a beer, when we arrived to collect our take away, which is called a ‘take out,’ in America. A Friday evening chill out, where chaps chat. My spouse was still at work.

It was an exceptionally brave move on my part, not spontaneous of course, but the bribery component was in place. A treat for her, had to be balanced against the pain threshold that her brother’s could endure. One parent, three children. Even a year ago this would not have been a remote possibility. A tiny little step, 'go to a restaurant to collect a take out,' something that most people wouldn't so much as blink at. I am no longer blinkered, I have cast them aside and I'm ready with my whip, lasso and sugar lumps, or rather, Goldfish crackers.

The men sat, drank beer and awaited their food. I was in sheepdog mode whilst the checker made out the receipt, by hand, slowly. There were only a few people in the restaurant but the candles were lit on every table. The boys, because they are small boys, needed to blow out all the candles. I needed them to refrain from fulfilling this quite reasonable desire. Most especially, I needed them not to lean over the diners’ table and spit in the vague direction of the candle, since lip closure and spit production are ongoing campaigns.

They wear a combination of mischief and hyper-vigilance on their faces. The checker takes my very patient credit card from the counter and runs it through her machine. It looks like slow motion to me, but I think that perhaps I am permanently stuck in fast forward.

I hear one of the guys recount his day and plans for the weekend, “then the kids have got their Walkathon at school tomorrow, should be kinda fun…..” The word ‘Walkathon’ brings one of my sons to heel. He parks himself on a stool next to one of the dads at the counter. He hunts his lexicon for social chit chat friendly words, as his feet pound the kick board under the counter. The top of his body is elbowed casually on the counter, an easy stance, the nonchalant man about town, for half of him. The two halves of his body fight each other, frenzied activity versus calm and friendly.

The checker hands me the slip of paper to sign. I need to escape as fast as possible as my ‘holding pattern’ is beginning to crumble. So far it is a success. Out of the car, into the restaurant, wait, patiently, whilst being entertained if rather inadequately, positive feedback and praise for control, loose lead not a choke hold collar, permit constant movement at the cost of refraining from doing other things that would be more noticeably odd, keep pleasant sane smile on face at all times. Seconds pass.

I watch the boys move swiftly around the square tables in the pattern of a maze, but they’re not running. They both obey the 'one finger rule.' A finger from each hand can touch things, but only inanimate things. This is our compromise over the compelling need to touch anything and everything, usually at a high often dangerous speed. We apply the rule as sparingly as possible, because it is an added burden on top of all the other things that they try so hard to do and not do.

We have been within these four walls for approximately 4 minutes, we’re up against the clock as the candles still flicker.

The whole exercise is one huge bribe for food. The French fries wait in the car for Junior. They cool. We have advanced beyond M&M’s, it’s like graduation but greater. This is so much better than a few years ago. A few years ago this would be the equivalent of emptying a cage of chickens into the room to flap and squalk and run around to cause mayhem and consternation, where every trip, voyage or visit was a venture into the unknown.

There are still lots of unknowns and hidden triggers that lurk to trip them up, but as the checker passes me the bag of food over the counter, it is the white flag of surrender, a visual cue that they notice and voluntarily flit towards the door, together, in unison, like the well trained troops that they are.

Only ten paces to the car, but it’s dark and damp. The doors open on command as two dive in to escape the chill. I lean inside to turn on the ignition and warm up the car as the third one collapses on the sidewalk to scream like a banshee. So close, so foolish.

I chuck the bag onto the passenger seat and step back to the soggy one, the incoherent one caught in our very own headlights. It looks like an apoplectic fit because now he is wet from the contact with the ground. Whatever it was, it is now ten times worse, a clash of tactile defensiveness and whatever it is, that I don’t know, for the moment. I won’t know ‘it’ for a few moments more, because he cannot tell me, because he has no words.

When the flailing dies down it is safe for me to intervene and scoop him up. He sits on my lap in the driver’s seat sobbing and soggy. We all wait. They wait patiently and silently in the back, as their legs kick the seats to two separate rhythms.

“Can you tell me what it is dear?” We wait a bit more, before he is able to tell us, faulteringly, “I fink you are go without me.”

But that was last night. A late night. A difficult and long night, the sort of night that tires you out.

Now, this morning, I have been in my usual holding pattern for just over four hours. We will all go to the Walkathon.

I will join them in an hour. I will stay at home for sixty minutes, in the peace and quiet with a book. If you enjoy the friendship of your other half, it is worth maintenance for a union to survive. Neither a marathon nor a sprinter be, accept enjoy the solitary.

*
"neither a borrower, nor a lender be"

"Neither a borrower, nor a lender be" says that it is best to not lend [money] to other people and to not borrow from other people. When we lend something we risk losing both the thing we lend and the friendship with that other person. {from Hamlet by William Shakespeare; Polonius speaking: "Neither a borrower, nor a lender be; For loan oft loses both itself and friend"} Example question: "Could you lend me twenty dollars?" Answer: "Sorry, neither a borrower nor a lender be." This says that you value the friendship and you don't want to risk hurting the friendship with a loan.

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Monday, July 30, 2007

Word play














I have been known to complain about my boys. It's fair enough for them to have different personalities, characters and preferences, but I would much prefer it if their version of autism could be the same too. [translation = parental convenience] Because autism is a spectrum disorder, I often forget that whilst they have little in common, there are residual similarities that can flare up without warning.

My youngest son has an obsession with death, dying and the fragility of human life. As a result of this, we are careful to avoid the subject. It’s not that we are not happy to discuss the issue in general terms. [translation = and have done many times] It’s more when a word, or an association with that trigger word, slips into an otherwise ordinary conversation, that trouble soon follows. Whilst we have touched on this matter before, I do not expect mortality to attack me from other sources.

My older son as waited nearly 18 hours for his sister’s gift. In his mind’s eye, he has anticipated that she would buy him a ‘transformer,’ whatever that might be? He has been told, often, that it will not be a ‘transformer.’ Instead it will be something cheaper, probably something he will not like. We have told him this frequently, reminded him of his impending disappointment, since his sister’s financial base is modest.

Her delight in being cast as the ‘giver of gifts,’ has only served to heighten the excitement. [translation = for everyone under the age of ten] For her, a gift, any gift, is a gift. For the boys, any gift, that is not a specific gift, is not a gift at all. In fact, not only does it cease to be a gift, it changes into an object of hatred.

It is hard to dampen my daughter’s enthusiasm. [translation = I don’t really want to, but I must, so that she in turn, will be prepared to have her gift shunned, her feelings hurt and cope with the disappointment]

It all happened so quickly, during the daily debacle, more commonly known as dinner. The noise is deafening, but fortunately we are in the garden. [translation = polluting our neighbours’ peace] My anxious daughter needs reassurance too. We confirm that after dinner, we will take her to the shop to buy the treats for the last day of soccer camp. The boys will remain at home and go to bed. [translation = status and pulling rank as the eldest] Whilst it would have been preferable to reassure her out of earshot of the boys, sometimes you just have to take the heat.

The boys’ protests rise a decibel or two at the outrage of exclusion.
“Boys! BOYS! BOYS!” she bellows with her hands raised high to catch they’re attention. They stop. [translation = the magical powers of siblings] “Howsabout I get you a prize whilst I’m there? Wouldn’t that be great? Would you like that huh? I’ll buy em with my own money, so it’ll be kinda little……..but only ……if you go to bed nice.” Her face is spread with a cheesy grin. [translation = so is mine] She bounces out of her seat and hugs me where I sit. [translation = the girl done good!]

So how can I burst this bubble? [translation = cigarette burns on a kitten] I have to deflate her a little, to take the edge off when they burst.

I take several opportunities during those 18 hours, to remind the boys about how to behave when you are given a gift that you hate. Since 99% of the gifts they receive fall into this category, they have had a great deal of practice.

Finally, her moment arrived. She presents herself with a flourish, clutching her Target bag to her chest in her hot little hand. She is ecstatic with anticipation. She sinks her hand in to whip out two little sets of cars, the kind that children are often given in party favour bags. Junior snatches his and disappears, shouting ‘thank you’ in response to my prompt to his rapidly retreating back. My other son points to the words on the packet, wordless. His sister reads them for him, even though he knows what it says: ‘die cast cars.’

His scream could shatter every window in the house, as he grabs the packet and hurls it as far as he is able. My daughter is horror struck. My son collapses on the floor to beat it with his fists and kick the hardwood floors as he howls. I settle my daughter with Nonna and concentrate on my son. [translation = before he damages himself]

He remains incoherent for some minutes. Now he is eight, he is big. Now he is eight, he is strong, but his anger is usually internalized. [translation = self mutilation] I stay close because his injuries are swiftly inflicted. The minutes tick by as we wait. I did expect a negative reaction, but not of this magnitude. Slowly his body relaxes. The growls turn to sobs. When he lifts his face, I see fear not anger. I continue to massage his back as I await the return of words. Eventually, they come:
“She is not my friend?”
“Of course she’s your friend! She loves you!”
“She wants me die?”
“Pardon?”
“She give me a toy to make me die?” Oh no, not him too! Is it contagious, this OCD fixation on death.
“Die can mean lots of different things. It can mean colour.” His eyes follow my finger as I point out all the different fabrics in the room, all their different colours.

I help him to his feet and lead him to the kitchen. I pull out an ice tray. “You can mould ice in this tray. If I put metal in it and the mould was shaped like cars, I could mould cars. That kind of moulding is called ‘die’ cast.” He looks at me dubiously, as his little brother bounces in, the little letter lord. His arrival gives me an idea. [translation = treason. Please don’t deport me. I’ll claim insanity and win.]

“Do you know what?” Both snap back with ‘what?’ Hallelujah! “When something isn’t alive, that's ‘die.’ All these other kinds of ‘die,’ making toys, colouring fabrics, that’s a different kind of ‘die.’” I double check that I have everyone’s attention. Miraculously, I have everyone’s attention. “You call it ‘D,’ ‘Y,’ ‘E.’ Not the same thing at all. See?” I waggle the ice tray with one hand, and flap my skirt with the other. Both boys’ eyes travel from one to the other and back again.

I wait.

One shrugs his shoulders. The other offers, “I fink I am liking ‘dye.’”

Both scamper off without a backward glance.


I only wish my ‘OFF’ and ‘ON’ switch, was as efficient as theirs. [translation = bad gene pool]

If they had glanced back, they would have seen a haggard old woman, trembling against the kitchen counter. I suspect that I shall pay for this crime of corruption, later in the school curriculum.

Post Script - I offer my humble apologies for my somewhat erratic visits to all your blogs, but now we are on Summer routine. [translation = a contradiction in terms]
Just in case you missed it, your reward for waiting for this blog to load and if you would prefer a blog that "loads like a dream" I am now a duplicate over "here." [although I'd rather have a few real clones than a mere duplicate]

Wednesday, May 16, 2007

Clash of the Titans

Sometimes, especially when they were younger, people would mistake my boys for twins. One with long legs, one with a shorter body meant that when they were sitting they seemed the same size. Like most twins or siblings, any similarities between them are of little significance. It is their differences in personality, character and disposition that singles each one of them out. If you then cover that child with a layer of autism, a patchwork quilt, [translation = homemade and of a unique variety] the result is too complex for the average nitwit, [translation = parent] to fathom.

Unfortunately for them, I am the designated nitwit of the household.

All human beings have little triggers, things that set us off, irritations and foibles. Sometimes we can identify the cause, something from the past that makes us react in a certain manner. Other times and other things we just accept, it’s part of our own singular make up. We find methods of coping with these triggers such as avoidance. If you find sirens annoying, then you don’t rent an apartment above the Fire Station. [translation = house] Although maybe, that is the very location to help you acclimatize and de-sensitize yourself.

My boys have lots of triggers. Each one has his own set, that differs from the other. They also collect more triggers as they get older. Old triggers seem to fade but are always lurking in the wings ready to pounce. Junior has a ‘thing’ about "death," dying and all other related aspects of ‘terminal,’ a word that he can read, write and spell accurately. [translation = an offshoot of hyperlexia]

His brother also has a ‘thing’ about "death" but different triggers. For reasons too humbling to go into, his current understanding, is that death occurs after the age of 90. Although his auditory processing is good, when it comes to numbers he is often confused, mistaking 19 for 90. Any word that sounds like either of those words can also be a trigger. Initially you might not think that there are too many words that sound remotely like either. If you break down those words into their phonetic sounds and jumble them up a bit, you may be surprised at how often their variants turn up in ordinary everyday conversations. [nye tea high teen nigh T]

Both have supersonic hearing, which means that they can tune out the sound of the motors that power the freezers in the supermarket and tune into the conversation between strangers on the other side of the store. [translation = or vice versa, or from one to the other, all without warning] Because they both have poor social skills, as well as a higher social concience than most, this means that he will hone in on the distance conversation that contains ’19 or 90,’ seek that person out and ask “you are going to die?” If the child that asks you that question has an expression of genuine concern, this may cause unknown and undue distress to the unwitting victim.

Where does this leave us? Well it can mean that sometimes something very small can cause a fireworks display. We need to appreciate that what might be an irritating trigger when we are adults, may have a much more explosive effect on someone smaller. [translation = with more nerve endings and less self control]

My son dashes out into the garden to rescue a cat. Both he and the cat are naked because my son was just about to start dressing. [translation = had completed undressing] He’s not quick enough to nab the cat who skitters back indoors. The sudden U-turn by the cat, sends my ungainly son off balance and into a heap. He hobbles back indoors distressed by his poor cat catching skills. He is unperturbed by the flap of skin on the top of his toe and the river of blood that follows him. I park him on the nearest available chair to commiserate with him about the foolishness of the feline population. I hope to distract him from the river of blood but he seems oblivious. We discuss herding cats, a subject near to my heart, whilst my hands investigate damage. His sister appears downstairs, sleepy eyed and tousled. “The school bus for the field trip is leaving at 9:10 sharp!” she advises and yawns. The ‘9:10’ of her message, penetrates my son’s psyche and sparks a negative reaction because he thinks she has said ‘ninety,’ “ninety? I am dying?” he screams, still obvious to his wound. The growing pile of blood stained rags and towels make her gasp. “Oh no! Are you o.k? Can I see? No!” It is her reaction that make both boys react. The real victim notices that he is leaking, “I am blood?” he enquires curiously, but bedeviled by thoughts of death. He looks in the general direction of his leg but fails to notice that he has a foot on the end of it.

At the same time I hear a "piercing 50 decibel" echo somewhere far, far away, [translation = the upstairs bathroom] followed by rapid fire footsteps. Junior appears within seconds to witness the scene, “he is blood, he is ugly, he is dead, hospital, emergency room, only 4 toes, 911…..” he talks at 90 mph, a never ending stream of words. His vast vocabulary is strung together. They all spell out the same general message of doom. When he reaches the end of his current word bank he squalks, a sound half way between a rooster and a drowning man.


Spouse appears, drowsy after three and a half hours sleep. My daughter is scared of the blood herself but recognizes that her little brother is spiraling. She soothes him with reassurance but he is impervious. When he starts to rip his hair and beat his body with his arms, spouse steps in and whisks him away from the scene.

At first glance this picture may seem a little grim, but that is only one perspective. A different view is a far more optimistic one. A few years ago we would have endured meltdowns and guessed at their cause; blood and fear, but clearly this is a much more complex matter. We are better able to understand the complexity because they are better able to express themselves verbally. As we get a better handle on the causes, we are better equipped to help them find other strategies to cope, help them practice them and help them learn.


The minutes tick by to bring us closer to 7 in the morning, an arbitrary time designated as appropriate to start the day. Another, very ordinary day.

It is at such moments that I am so grateful, that the two and a half years of the ‘plaster campaign,’ [translation = Band-aid] will finally pay dividends.

Sunday, May 06, 2007

Fear but not loathing, in San Jose

Many people are fearful of autism. As a parent of two autistic boys it’s not ‘autism’ that I fear, it is the ‘unexpected’ that comes with autism that gives me cause for concern. Although I understand my boys better than I once did, I still find that supervision and vigilance have to be my greatest priorities in certain situations. Luckily, I know what most of those situations are. Our home is no longer ‘baby proofed’ but it is safe for my children. Outside our house offers varying degrees of danger even though to most other people this might be hard to appreciate. So very often, it is not the obvious dangers such as roadworks surrounding a gaping hole in the sidewalk, flagged with orange cones, netting, ribbons and flags for the unwary, but much more mundane matters.

We begin to leave the restaurant.

It is commonplace in America to find a complimentary basket of sweets [translation = candy] usually mints or lollipops and tooth picks at the checkout. This is curious for a number of reasons. Firstly, you have just eaten so why would you need more food? If you are unlucky enough to have need of a toothpick, surely they should be housed in the bathroom [translation = restaurant] as surely no-one is going to walk or drive home picking their teeth? That aside, this combination, attractive preferred food place adjacent to a means of torture [translation = pointy, sharp toothpicks] is more or less guaranteed to provoke a meltdown of catastrophic proportions in my youngest son. The main issue here is the dichotomy between the desire to reach out a hand to take the lollipop and at the same time have the primal fear of being speared by a toothpick!

Fortunately we have had a couple of years to adjust to this pitfall. [translation = only one of the many dangers associated with eating ‘out.’] Our current ‘coping’ mechanism is for either his brother or sister to select and then pass him the lollipop. This again, is not without it’s hic-cups and drawbacks, but for now, it will do.


We exit through the first and then the second glass door without incident, or only a couple of minor incidents due to incorrectly calibrated compasses in one child, and poorly co-ordinated motor planning in the other. Outside the second door, I have a collection of children who bear a strong resemblance to drunks being kicked out of a bar at 3 in the morning. No-one appears to be able to find their balance as they are distracted by the lollipops which are encased in a plastic wrapper. This kind of substance is always a challenge for people with poor fine motor skills. [translation = dodgy fingers] The situation is made worse by the fact that the seleophane is transparent. [translation = they can see the prize but can’t access it] The enhanced level of frustration accelerates. One bites off the wrapper and spits it out on the ground. For the other one, with oral defensiveness, [translation = sensitive mouth area] this is not an option. Junior can now see his two siblings enjoying their lollipops, the same lollipop that remains caged and off limits to him, which further fuels his rage. It is my experience that it is not possible to do an Irish dance, [translation = think River Dance] whilst screaming in a motor mouth fashion and expect your limited hand power to function. Recognising that you are in ‘overload,’ is also probably beyond your capabilities by this point.

The sidewalk [translation = path] is as wide as a country lane, but the four lanes of traffic are far too close for my liking. Imagine how your hands would react if I emptied a nest of baby spiders onto your bare skin? Your instinctive reaction exactly matches how my son behaves. Are you still holding the lollipop now that you’ve brushed off the spiders? No? You dropped it? Where is it? There it is, but off course it’s brittle and it has broken. Now he veers off into a vortex, a combination of a fire cracker and a jumping jack. The noise is enough to shatter glass. He could shoot off in any direction. 360 degrees of potential danger. I have no other option than to scoop him up flailing. Six and a half years, and 54lbs of supercharged nerve endings. You can be as vigilant as you can, supervise every second, but unless you intervene at the right time, in the right way, then there is a heavy price to pay.

When I say unexpected dangers, they aren’t really. I do know most of their triggers. We’re so lucky that they older they become, the less frequently this occurs. Not several times an hour but merely a few times a day. When you also consider that now, these meltdowns are so infrequent, it becomes less and less likely that they will both have one at the same time. It is easy to see how they both blossom and grow. But that’s just one of the many reasons that I love to live here, those wasteful, environmentally damning, beautifully wide, safe, sidewalks, that is to say.

 
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