Truth or Dare? [Part 1]

Forty plus years ago, I would walk to and from school every day with my sister. Twenty plus years ago, I repeated this routine with my own daughter. Currently with the present crop of children, walking anywhere is not part of our routine. I decide that I need to take stock and figure out why this should be?

The easiest thing to do would be to blame my two autistic boys who have strong objections to walking. What I like about this excuse is that there is a nugget of truth in it, or rather a tiny granule. They are autistic and they don’t like walking. Convenient though that is, the real truth is more inconvenient.

The first truth is that I have a genuine dislike of anything that could remotely be described as exercise. Exercise is in the ‘boring’ category for me. Not only is it boring, it is also generally time consuming, unproductive and expensive. Whilst I was happy to cycle to work for a decade, that actually saved commuting time, money, the planet and it was fun. Exercise bike’s and their ilk, are works of the devil guaranteed to numb the brain.



The second truth is that it’s really America’s fault and has nothing to do with me personally at all. I am quite blame free. America is a car nation. Anywhere that you might just possibly want to visit, is inconveniently located at least one car ride away. Anywhere else that you may not be quite so interested in visiting, but have to visit, will be located at an additional, even further, car ride away. The total dominance of the car mentality means that as often as not they forget to build any sidewalks.

A few years ago, I worried that when we visited England that I would have forgotten how to walk at all. I heard on the radio that a healthy bod should take 10,000 steps a day. A huge and daunting figure. I read about how old people needed to do weight bearing exercise to increase bone density. I bought a pedometer and stuck it on my waist band after I dropped my little daughter at pre-school as I still had the boys at home.

I was too busy to read the LED screen at any angle with splotched bifocals as I staggered around the house with endless hampers of laundry and carried one or other child or sometimes both, until mid morning. I briefly parked my pair of load bearing ‘excercisers’ in the baby swing and play pen respectively, where they commenced their vocal protest. I took a glimpse at the little screen, gave it a little tap and noticed that it read well over 10,000. I tossed it on the kitchen counter. I didn’t need to exercise, I needed a rest!

The third truth, is that I’m as guilty as the next person of taking the easy option. Even more years ago, I bought a double buggy or stroller, so that we could enjoy fresh air. We would not remain prisoners in our own home. I suspect that the fault lay in the buggy design, in that the children faced forwards whilst I pushed from behind. Maybe it was because they couldn’t see me but whatever it was, the mayhem and hysteria that ensured poured icy water on my plans, and that was before the rainy season.

Only two years ago I tried. We walked from parked car to school, for an evening function. After less than ten paces they collapsed on the ground screaming like banshees, rolling on the lawn and kicking the concrete. The homeowner peeked out from behind the curtain as surely I had beaten them with a burnt stick?

Now I am faced with the reality of my sloppy ways, a collection of children completely incapable of walking more than 9 yards outside their own home. We are in dire need of remedial action. They still have no traffic sense, which means that every road is a danger. They’re never going to acquire any traffic sense if they’re never exposed. I decide to pose as a walker and expose my psyche to a new campaign of torture, for all of us for different reasons.

In theory it should be easy. I think of the one thing that they have continuously hated since time immemorial, car journeys. Surely this is the most obvious solution. Hate the car, then avoid it and walk! To be fair I know that it is mainly the ‘transition’ to the car rather than the car ride itself, but it still have a crumb of logic in there somewhere, doesn’t it?

The initial campaign will be to walk home from school every day. I make a dry run. Two point two miles as a leisurely pace. 22 minutes of stroll, on my own, including traffic light pauses. As I walk I realize that we won’t be able to walk on Wednesday because of double therapy. We won’t be able to walk on Fridays when the triple play dates take place. 3 walks a week seems both pathetic and Herculean at the same time.

My brain flips back and forth between the two options, with little spikes of terror as I see the uneven path, the sprinklers, the trash, an infinite number of road signs to read and the occasional dog and owner. The more I walk, the more hic-cups I see both on the horizon and beneath my tatty shoes. The temperature is in the 70’s in March. In a short while, it will be too hot to walk around outside during the day. I’ll need to take sunglasses, baseball caps, water bottles and sunscreen. Sunscreen! Just the thought of sunscreen is enough to give me an attack of the vapours.

Which two additional adults could I bribe to accompany us? Someone to guard each little body, especially the ‘easily collapsible’ one and the ‘likely to spin off and bolt like a fire-cracker’ one. Maybe I should just tie us altogether with little bits of string, a chain gang of incomprehensible safety?

Hope springs eternal

Some unsophisticated parents inadvertently form causal behavioural links within their children. The bell rings and Pavlov's dog salivates. The bathwater splashes and my youngest son runs at the speed of light, screaming like a banshee.

Once these associations have been formed, it can be very difficult to unlink them. Repeated exposure in tiny, but ever increasing increments, can eventually be successful.

Even now, his first response is always a protest, but that may just be because the suggestion of a bath is also a transition. He is hard wired to resist transitions.

In this particular instance I have no option. I remove him from the scene of devastation and plop him in a bath of warm water. He’s too exhausted to resist. I leave his father in charge of the other two and the clean up operation after junior’s spectacular, technical vomit performance. I should like to pull rank and claim that I am the mistress of delegation, but it truth it's more that he is a better team player than me.

Junior lies in the water semi inert. I park myself on the bidet, the closest point of contact and wait for him to calm down. For many children, an upset stomach is often caused by eating something that has disagreed with them. In this particular child, a neophobic one with a diet of 17 foods, I know that nothing new or dodgy could possibility have entered his system, either deliberately or accidentally. I must mine for details and turn the situation to my advantage.

His silence is entirely predictable as ‘ill’ usually means that his body has to concentrate on other things, rather than speech. After a while, his feet start to show interest, as toes are so much safer than fingers. He taps the different surfaces, tentatively, especially as he has to ensure that his head remains above the water line, cannot get wet. After a thorough preliminary investigation, it is safe for his fingers. His fingers repeat all the taps that his feet have just made. “Dis is hot, dis is hotter and dis is dah hottest,” he announces with reference to the faucet fitting. His eyes travel back to mine, a 'check in' that allows me to bask in a brief moment of joint attention and referencing back. “I like because it is dah smooth too.” For the first time in four years I forgive my spouse for spending a fortune on European bathroom fittings.

“So …….I was thinking.”
“Wot?”
“Why are you ill?”
“I dun know.”
“Maybe it’s all the licking you’ve been doing recently?” His open eyes match his open mouth, as he concentrates.

You may be familiar with the oral fixation stage of development in babies. They mouth everything, nothing is safe, everything is covered with drool. Some babies skip this stage completely, or do it later, sometimes much later. Some little people with oral defensiveness, avoid almost all textures and tastes. These are often the same little people that skip the ‘mouthing’ stage. When such a person begins to lick things, a parent, or at least some feeble minded parents, might be tempted to turn a blind eye. Some feeble minded parents, who secretly delight in this mis-timed development, believe that it may be socially inappropriate but a delayed development is infinitely better than no development at all. It would appear that blind eyes result in tummy upsets.

“Can you remember what you’ve licked today dear?”
“Um…..no.”
“’No’ you haven’t licked anything or ‘no’ you don’t remember what you licked?”
“2.”
“O.k. lets start with when you woke up. What did you lick when you woke up?”
“Dah mirror. I play snailses.”
“Lovely! Good remembering.”
“I licked it until is was cleaned.”
“Great!” I debate what bacteria might be on the surface of double mirrored doors in a bedroom, or at least the first four feet from carpet to tongue height? He sits in the bath water. Each arm extended. He mimicks the diving surfacing motion of a dolphin with each hand until the dolphins' noses collide in the centre. As they crash he grins with satisfaction. He shares his success with me as his eyes meet mine. He repeats the diving in a ceaseless loop of perfection because OCD tendencies are stronger than other tendencies. If the dolphins mis-time their aquatics he curses, "barnacles! barnacles! barnacles!" and begins again, but the eye contact is more rare and precious than any metal on the planet. Barnacles, can be a difficult swear word to pronounce. Every time he swears incorrectly, he changes to his alternative, "fishpaste! fishpaste! fishpaste!" which of course is also difficult to pronounce. It must be frustrating, not to be able to swear to your own high standards.
“What did you lick next, when you came downstairs perhaps?”
“Er……I be licked dah window.”
“Ah.”
“But I stopped.”
“Why did you stop.”
“It be freeze my tongue. I like lick dah warm fings.”
“Ah, lovely. What next?”
“I be finded a warm fing.”
“What warm thing did you find?”
“Ella.”
“Oh! You licked your sister?”
“Yes. But then I bited her coz she said ‘no lick me!’ and she be dah shout and dah loud and she hurted my ears wiv dah noise.”
“Oh dear!”
“She…… be taste nice and……..salty.”
"Well if you eat your sister you won't be a vegetarian any more," I tell the child who doesn't eat vegetables.
"What I am be?"
"You'll be a canni......er.....um.... a carnivore, or maybe just an omnivore." Om, om, om.

One step forward, two steps back. I suspect cross contamination shortly.

Post script - after five baths in five hours, after five further incidents of illness, someone submitted to having a wet head. Oddly enough, I now seem to have inadvertently linked 'baths' to 'cure all.' Baths made him feel better, not well but better, cleaner, more relaxed. So it appears that we have no further need for the medical profession. There again, it is far more time consuming to bathe than to provide a Bandaid, and not quite so portable. Come to think of it, excessive bathing might feed into the OCD cleanliness nightmare. Maybe I should just stop thinking.

I am happy to swim in the wake of at the slowest little life boat in the convoy, doggy paddle of course. Woof!



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Don’t try this at home

Your mission, should you care to take it………is to herd three children from the school yard [translation = playground] to the car parked by the curbside at a distance of a mere 50 yards from where you currently stand?

Recipe – take two people, one adult and one child. Ready? Stand together so that as much of your body is in physical contact with the other. [translation = it doesn’t matter whether you’re front to back, back to back etc.] This is your starting position. Set? [translation = get ready] It is now the smaller person’s duty to rotate around the larger body, whilst remaining in physical contact at high speed. Go! The bigger person must now walk towards the car whilst the other continues to rotate.

The smaller person must move their feet with greater agility to avoid entanglement. [translation = a bit like French skipping] Additionally the smaller person should repeat a phrase of three words continuously, preferably rhyming, at just the right pitch and at 50 decibels in order to ensure that the adult brain is incapable of functioning.

Now, would be the ideal time for the small person to stick their head under the upper garment of the adult such that flabby female flesh is exposed to those who look on bewildered. It will not help to yell ‘proprioceptive input’ at the aforementioned audience at this time. [translation = or any other time come to think of it]
Continue thusly in the general direction of the car.

Additional garnish – choose from the following [wisely] –
Hold the hand of the child that falls down a lot.
Ensure that you haven’t left the third one behind.
Be aware of personal belongings, yours and theirs.
Add crowd.
One pinch of noise [wide choice available to tune into or out of]
A smattering of well wishing comments from friends.
Traffic safety persons [with whistles]

Yes, it is ‘oh so cute’ when they are two, maybe three, but at six and a half, the general public do not vote this way. They register deviant and give a wide berth to the spectacle.


Repeat as necessary, [translation = daily] until phase passes or a suitable ‘intervention’ can be manufactured.


It would probably be wrong for the adult to break free at this point and run away, right?
[translation = where is a trampoline when you need one?
Why isn’t there a swimming pool there instead of a storm drain?
Why didn’t I bring his weighted vest?
Don’t you dare carry him!]

In, Out, Shake it all about

Autism or no autism, some things are beyond the pale. Bear in mind, that for me, musical appreciation would guide me to be more of a ballroom dancer type. A dignified glide, so as not to dislodge the tiara nor muss the corsage. I believe that young people today, do not favour [translation = favor] such pastimes, preferring more aerobic forms of dance. [translation = I am allergic to anything that might make me glow {sub translation = perspire}] But I digress.

Back to the ‘shake it all about.’ Hold that thought. No! Not that one, delete that naughty thought and go back to the children’s perspective. [translation = the innocents] That’s right, the Hokey Cokey thought. [translation = Hokey Pokey] Now we’re on the same page! Think of this, as a ‘not so scholarly critique’ or explanation, of this children’s dance, possibly from the viewpoint of one, or maybe two, autistic children. Acknowledge or deny as many as you deem appropriate.
For current purposes [translation = controlled clinical environment] we will ignore issues such as the volume of the music, be that self generated, by singing [translation = unlikely] or utilizing some form of modern technology e.g. hifi, stereo, radio, tapes, CD’s, records[?] etc. [translation = that’s about as modern as we get around here.]

We’ll also ignore the following; company. [translation = who is with us] Where we are? [translation = home or somewhere public and scary = synonymous] Variables such as simply having a bad day, any current phobias or obsessions. [e.g. the need to have arms clamped tightly to the body and that legs be pinned together at all times. A bit like a soldier standing to attention but in this instance, for the purpose of self protection.] We want to keep this as simple as possible. With me so far?


So, we have the familiar annoying tune, [translation = temporarily mislaid inner child] with words, simple words. [translation = lets not get bogged down in the speech delays] Although the matter of prepositions can be a nightmare, we will dismiss those too. [translation = in, out, up, down, between and we’ll ignore the issue of ‘shaking’ whilst we’re about it] Whilst they know all of these words, then are not considered important enough to use appropriately. On the whole they are surplus to requirements, afterall most of them are pretty small words. Generally speaking they prefer bigger words, multiple syllable words such as ‘voracious’ or ‘commercial.’ They may not be able to pronounce them correctly, but they still prefer them. However, such terms are not much use, if you’re trying to dance and sing at the same time. [translation = unless you know otherwise?]

Right, so now we’ve cleared the pathway of clutter, we can begin.
I lied. There are a couple more issues that we need dismiss. [translation = eliminate for the purposes of this discussion] Independence. An autistic child is often independent. By this, I mean that they are on their own programme with their own agenda, as many children are. However, in two particular cases, the cases of my particular sons, [maybe others] when they are doing whatever it is that they are doing, they object strongly to being asked to do something else. This phenomenon is known as a ‘transitioning problem.’ [Sorry! Challenge] It is an issue for many children, but autistic children are far more tenacious.

This is linked with a secondary [translation = probably far more important] issue of motivation. [translation = I left the best for last] It goes something like this:
Hunker down, gain eye contact, arrange facial features into animated expression, moderate tone of voice to sound excited, use hand gestures assuming that you are not guiding the child’s body to orientate them towards you.
“Come on you lot! We are going to play the Hokey Cokey?” Always a statement, never an invitation, as the answer will always be ‘no.’ [translation = guaranteed.]
“It’s not the Hokey Cokey Mom, it’s the Hokey Pokey! They’re never gonna play if you use the wrong name!” Valid criticism, as always. I put an arm around the shoulder of each boy in the hope of conducting a positive energy force into their little bodies.





“Nah, dat is boring.” Simultaneous hurdles; stop what you are doing [translation = transition] do something more fun [translation = motivation]
“Come on, it will be fun!”
“Nay, dat is not fun.” Child may be reflecting upon the challenge of co-ordinating body parts, following instructions, balance, and such like, all of which have negative connotations because of the perceived difficulty. [translation = which is a reality too] So, just assuming that you have battled your way to this point, you probably have insufficient energy reserves to sing and dance too. [translation = flat battery]



{Sub translation = who needs a tiara anyway?}