Interlopers and the Extras

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Whilst she is away, roughing it at Science Camp......



meanwhile the boys........




camp out in the lap of luxury.



And in an "Extra" today "Barbara" is hosting an event, a "Spring Blog Carnival" which asks the question:-

'how you have arranged your home to enhance your child’s development?'

I believe this is a button / link free event but I'll post a box at the bottom just in case you would like to contribute your thoughts and opinions.

This is a difficult question to answer thoroughly mainly because it is constantly changing.



For instance the six foot, blue wedge which entirely covered the family room floor now currently resides in the spare room, along with the trampolene and the L-shaped sectional. This is because my children are much bigger than they once were and need a lot more romp room.




In truth it is less used than it once was because now my children can romp outside as well as inside, something I couldn't even imagine this time last year, as outside was also out of bounds for my little hot house plants.






In fact the more I think of it the greater the list becomes. I cannot think of an area of our lives that has not been significantly altered from my own personal sleep patterns to the food that we eat. There is not a single spot in our lives that has not changed and keeps changing.






To grasp the depth of these fundamental changes more easily, all we need to do is think of any activity and run it through the lens of the sensory, what we see, hear, touch, smell and taste.






Until last summer we only ever went upstairs to sleep, not at any other time. The children could not be left unsupervised for more than a minute, maybe two.




Our house is still full of schedule boards, PECs, wipe boards and timers, as they provide scaffolding support even though their speech has improved dramatically.




We have tick down charts for every major event even if the major event is something as minor as a puppy training class.



We have labels and other charts in the most surprising places that cover the most trivial of matters. Everything is place at the right height, theirs. I sometimes suspect that our entire house is held together with Velcro.


But the only truly mysterious thing ..... is that they keep growing.




p.s. As if I didn't already have enough to smile about, this afternoon a box arrived amid the triple playdate!




I just love receiving parcels, and I had no idea who it was from except:-

Chelsea and Scott Ltd.

Who?


"Able Toys" and "One Step Ahead."




And everyone was excited about it.

Don't say that they're too old, novelty has a big impact on all children and if they play with anything other than electronics or Pokemon then that's a jolly good reason to celebrate. Thank you "Tammy" you've certainly got you "work" cut out for you.

A Weight of my mind - sweet dreams

Do I really need to buy a weighted blanket?
Do they work? Is this part of a sensory diet? Why do they work? This was [more or less ] the most interesting google search question this week. Or two weighted blankets in our case? I might add that this item is just about the most hidesouly expensive thing anyone would ever care to buy. I don’t know what you consider to be affordable or within budget but if you require two, as we may do, that is a pretty hefty investment. If you add the postage costs, remember, they’re weighted which means by very definition they are heavy, then more dollars are floating away than I am able to count. However, I digress.

Do they work? This should be where we really start. The benefits of weighted blanket are well documented elsewhere, primarily in the ‘calming the fizzy sensory system.’ As with most therapy items, a weighted blanket is unlikely to cause miracles but used in combination with other treatments, together, they may help provide a more balanced yet full sensory diet.

Children, autistic or otherwise, often benefit greatly in the sleep department from any number of different calming techniques together with a sensitive, carefully tailored night time routine. Some of us may remember the benefits of swaddling babies, either swaddling our own babies, or being the swaddlee ourselves when we were babies. The swaddling technique used to be quite commonplace.

Although many manufacturers claim that their blankets are fully washable, if a child is a frequent bed wetter then be sure to read the fine print large!

However, to answer the question more directly, I only need to recall when I was a youngster in the ghastly days of sheets and blankets, long before leisurely duvets were invented, or rather imported from our European cousins into England. Those were the days when there was no other option but to make the bed daily to restore order to the messy higgledy piggledy pile. However, it did have the added benefit then when a parent came upstairs at the end of a long and weary day, they did indeed ‘tuck us in.’ My Mum, in particular, would snap those sheets so tightly across my bod it was like being laced into a corset, and almost as breathless. The net result, apart from a concave chest, was a blissful night of sleep, secure if not padlocked. So if you want to save yourself a whole tonne of money, toss the comforter and invest in the old fashioned. You may even be able to borrow the old stuff from a close and crumbly relative.

p.s. really skilled sleepers who have been cocooned in this elastic fashion, soon learn to remain static during sleep and if they’re really, really clever, they can squiggle out of the bed in the morning, to allow the sheets to ping back into place with barely a visible wrinkle, which neatly takes care of the bed making problem.

When first we practice to deceive

A thorough desensitization plan is an essential tool for many parents of autistic children. The key to success is both consistency and persistence with a healthy dollop of patience and encouragement. It’s a recipe for success around here and after many long years of practice we are now the very proud, temporary custodians of an ex-neophobe. This is not to say that my youngest son actually enjoys very much of the food in his new diet but he does eat it.

For many months now we have been fading the reward, the chocolate pudding, until it finally fizzled out about a month ago. However, chocolate pudding is a very good way of getting high calories of fat and protein, which when you’re very skinny may not be such a bad thing. As a consequence, I decide that the reintroduction of chocolate pudding might be one way of packing on the pounds, after he has eaten dinner and after he has already eaten some vile fruity dessert of my own concoction. My difficulty is a practical one, remembering to make it in advance. Chocolate custard is not a recipe that can be rushed. I reach the obvious conclusion, I ask the chap with the very big memory to remind me himself. What better motivation could there be to increase communication between me and my youngest?

I share my cunning plan with him, or at least the pertinent parts.
“So……when we get home, could you remind me to make your pudding? I always lose the post it notes?”
“Sure……you have gotten dah right guy for dah rememberings.”

As we drive home from school we chat in the car, or rather I ask questions, and everyone ignores me as the word bank is officially empty after a whole day of school. We run through our usual routine. First the 20 yard dash through the back door with a finely pinched nose to avoid being gassed by the perfume from the Jasmine, practice our favourite words of the week, namely ‘suffocate / double helix / partial / social worker. Then after a snack and some downtime it’s onto the nightmare of homework. Hours pass in this one hideous activity until we are all thoroughly drained. We pack up, prepare pack lunches and then on successful completion they are all free to indulge in thirty minutes electronics time. This in turn gives me 30 minutes to get supper on the table unhampered by demands as they tune out. As I prepare nutrititious cold salads in the 95 degree heat I contemplate how I can possibly bribe him to eat any of it? Chocolate pudding! I forgot again. I dart after my son engrossed in his game.
“Hey weren’t you going to remind me?”
“Wot?”
“I asked you to remind me to make something for you.”
“Wot?”
“Do you remember what it was?”
“Yes.”
“What was it?”
“Make chocolate pudding.”
“Yes but you didn’t remind me!”
“I did.”
“You did! When did you?”
“I don’t know.”
“I don’t remember you reminding me?”
“I did.”
“When?”
“Er……look it.”
“Look at what?”
“Dah post it note.”
“What post it note?”
“Dah one dat I am writing dah chocolate pudding.”
I dash back into the kitchen……..sure enough, there is a post it note stuck to the saucepan together with his own unique time stamp. Now that’s a heck of a lot of reciprocal exchange!



By the by, it may be that you noticed my new thoroughly delightful "favicon" [although that is probably the wrong word.] If so you may wish to consult "Furiousball" about your web needs for his reasonable prices, fully "qualified" and tech savvy approach is sure to leave all "customers" thoroughly satisfied.........why does that sound vaguely rude? You can find his "resume" and "contact" details on this post "here."

Cheers dears

Please add your name to the second "giveaway."

Wordy Wednesday

My life may not be a bed of roses:-





but you won't hear me moaning about autism, or if you do, I'll just be mumbling into my socks, because I am a natural grumbler, but please don't compare autism to cancer.


"Boufmom" who blogs over at "Who says 8 is Enough" is hosting a fundraiser for her "chum," from May 5th to May 12th.

As she says:-

'We are holding this blog party in honor of Tuesday Whitt, my friend Jess' beautiful twin daughter who bravely fought and sadly lost her 8 month battle with stage 4 neuroblastoma in January of this year.
We are doing this fundraiser to hopefully raise awareness about this awful disease and to raise money for the Tuesday Fiona Whitt Foundation, where all proceeds go towards pediatric cancer research.'

As "Jess" says:-

'bereave |biˈrēv|

verb ( be bereaved)

be deprived of a loved one through a profound absence, esp. due to the loved one's death : the year after they had been bereaved | [as adj. ] ( bereaved) bereaved families | [as plural n. ] ( the bereaved) those who counsel the bereaved.


It's ok to reach out to us. You are not bothering us. It's ok if you can't. If you don't know what to say, "I'm so sorry you lost Tuesday" , with, or with out a hug, is all we need. It's ok if you say something and I start to cry. You didn't cause it. Death caused it. You didn't "remind" me of her death, because not a second goes by that I am not thinking of her. Aching for her. It's ok if you see us out and we are smiling and appear to be doing well. At that moment, we probably are doing well. Other moments we are doing so, absolutely, not well. It's ok if you said the wrong thing or didn't say the right thing because there is no wrong or right thing to say. There is no wrong or right way to BE when your child dies. There is no right way to do this. We'll figure it out together.

Thank you for loving us.'

Personally, I cannot even imagine what that would be like.



Whilst it may seem a little daft to start another giveaway even before I've finished the first "one," timing has never been one of my strong suits. There is a family I know who have returned to Ireland who have battled with cancer and won a reprieve so this is a topic quite close to home, yet far away.

So without further ado:-



so here it is.......



........maybe this one has your name on it, so please consider whether this is something that has touched your life.

Yes, I will bite the bullet and ship worldwide if we don't go bankrupt first.


We are approaching Mother's Day in the United States, the second Sunday in May, it may be that you might be able to spare a thought for this "family," I hope. This giveaway will end on the 12th of May.

Whilst you're at it, again with Mother's Day in mind, maybe we can extend a green hand to help families worldwide with "Oxfam America Unwrapped," as that would be fairly high on my list.

If you need some light relief, then head on over to:-


"DJ Kirkby" over at "Chez Aspie" and test your brain power.

Spring has Sprung around here and so it's time to tackle the garden, or more specifically, how to train a plant to be a standard? Standard? What kind of Standard? The standard kind which has one stalk. There are many reasons why this is a useful exercise, most commonly for people with either small garden or narrow flower beds. If you can train the plant to do all it's flowering at eye level then this frees up the bottom of the bed for other plants and effectively doubles the amount of blooms you can squeeze into a small space.




This is Jasmine which has many stalks as well as many runners. First find the thickest or most vigorous stalk and cut back all the others at ground level. Nick off any little sprouts that emerge from your main stalk.





Within a year you can move from a wild out of control plant to this stately one stemmed version. This of course is a honeysuckle not a Jasmin.




There will always be more sprouts at the bottom but they're easy to remove on a weekly basis.

Be careful what time of year you attempt this tackle as you may wipe out a whole years flowers. Ideally this should be tackled at the end of the flowering season ready for the next year or just after the first flowering as here it is not uncommon to have three or four blooming periods.


Now if only everything else in my life were as easy as this! There again, 'standard' is probably a little over-rated except by certain control freaks like me.

Cheers



So don't forget to add your name to the "original post list" and help spread the word for the giveaway, wouldn't like to miss anyone out.

The Good Old Days

Hosted by "Tracy" at "Mother May I," but the photo-picture below will whizz you right there with one click.

Just call me snap happy.

Tomorrow my daughter is off to Science Camp for four days and three nights. We parents have been encouraged to write letters to our children for them to read whilst they are away. Writing is not one of my strengths, or rather, legible writing is not one of my strengths. Hence she will be receiving the following enclose with a letter painfully scribbled by me.

Tuesday

1.





2.




3.

Wednesday

1.





2.



3.



Thursday

1.



2.



3.



Friday

1.


2.



3.






I drew them a long time ago before she was born but I think she'll recognize the characters even if we are a decade older and greyer.

Yes, I know, everyone hates skinny women but I try and play a supportive role.

Cheers Dears



This could be yours:-




So don't forget to add your name to the "original post list" and help spread the word for the giveaway, wouldn't like to miss anyone out.

Caught dead to rights

I flit around the kitchen with the phone clamped to my left ear.

Productivity is hampered without the use of my hand but the right one copes with the usual domestic tasks. After 22 minutes on ‘hold’ my patience wears thin. Supper is nearly ready.

The children continue to play Wii. We conduct a limited conversation roughly along the lines of “come see our video that we made,” v. “in a minute, I just need to finish cooking.” We repeat this exchange once every three minutes.

I sip tea from the second pot in the same time span, to whet my mouth for the silent curses of ‘hold.’ The musak on the telephone vies for my attention but the background musak from the Wii game, Swan Lake, massacred and digitally rejigged by the boys, is every bit as annoying, especially since the same musical phrase repeats approximately 6 times.

I love the Wii music game. It is one of the most effective therapy tools that we bought completely by accident. If we wanted a tool to practice eye hand co-ordination then we certainly found one. Of all the hand eye co-ordination tools that we previously purchased, none have been effective because they all lacked the magical quality of motivation. Now we have loads of motivation. I can’t put my hand on my heart and say that I have noticed any particular improvement in hand eye co-ordination but 30 minutes of daily practice over time, with this pleasant pastime, must have a positive effect..... eventually. As I sip the dredges of the 7th mug of tea my brain registers ‘full capacity.’

I peek at the boys and then slip into the bathroom. My son appears just as I sit down, as locked doors and privacy are an anathema around here, “now you are watch our video?” I look at him with the phone still on my ear, sitting and wait for him to play catch up.
"Wot?”
“Look at me dear!”
“Yeah……I am lookin.....you are not doing cooking now!”
The phone musak stops to permit a voice on the line, “hi, how may I provide you with excellent service today?”









So don't forget to add your name to the "original post list" and help spread the word for the giveaway, wouldn't like to dip anyone out.

Lookie, lookie, lookie!

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Siblings not quite so rivalrous.

The influence of modern technology:-

Whilst the boys play 'club,' they require their sister to 'guess the password' to gain entry.

"Webkinz?"
"Nope."
"Fuzzy Wuzzy was a bear?"
"Nope."
"Social worker?"
"Nope."
"Double Helix?"
"Hey! You only get three guesses. You chance expire. You get to try later. Hit reset password."

More fruitiness with our first home grown strawberry, in April!

This could be yours:-




So don't forget to add your name to the "original post list" and help spread the word for the giveaway, wouldn't like to miss anyone out.