I have moved over to WhittereronAutism.com. Please follow the link to find me there. Hope to see you after the jump! :)

Saturday, August 15, 2009

Pet Play date

This is a sketch of the area in the garden that we cordoned off for the dogs.








A photograph would have been quicker but then you'd also see the mess, so this is the cleaned up version.



This week we have Bella, Thatcher's sister visiting us.






She's littler but the same age, and clipped. In the first sketch above, I see a neat square that will give her time to acclimatize, but I don't see with a dog's eyes.

This is what a dog sees:-




What a twit I am. Come and visit "Nonna" to view more ways in which I demonstrate "twitishness." That really should be a word.

Friday, August 14, 2009

Dress Code

Slurping Life



Get the code:-
Cut and paste
from this little
boxy thing below


The old yardstick



The new metre


Well it is summer and hot, so this will do very nicely thank you.
[by his own fair hand to boot!]


Thursday, August 13, 2009

Back to the Future – the weight of the world

We chat on the way to the supermarket in the car. It is a proper chat because it is not about Pokemon. Who ever thought that we would ever enjoy a casual chat! The casual chat has been instigated by me, because I wish to distract from the imminent torture of the supermarket. It’s a thoroughly delightful new tactic. The chat is also prompted by the Brain Quest Third Grade (3rd Edition). As they are about to enter 4th and 5th grades in the Fall it is obvious that they are both well below grade level academically. When they were little, the answers were easy but the words were difficult. Now the answers are elusive but the words flow much more freely. All too often I find that as one thing advances another recedes, it’s a trade off. I believe it’s quite common. You can see it in "John Elder Robison’s" book called “Look me in the Eye.” When John was little he had extraordinary talents but as an adult those skills were unavailable to him. The chat comes to an abrupt halt.
“Lets not talk about it any more.”
“Why dear?”
“Coz I don wanna talk about dah future.”
“How come?”
“Coz I worry about dah future.”
“What is there to worry about?”
“My babies.”
“What babies?”
“My children.”
“But you don’t have any children yet.”
“I know and I’m worried I’m not gonna have any.”
“Why won’t you have any?”
“Coz of dah married bit.”
“The married bit?”
“No-one’s gonna wanna marry me.”
“Oh no, you’re quite wrong there. I’m absolutely sure that there’s someone out there for you, just the right one.”
“But I can’t do it.”
“Er…..do what dear?”
“Dah slow dancing.”
“Slow dancing! I don’t think that’s very important. Not everyone likes to dance. Anyway, you’re so good at fast dancing and robot dancing. Lots of people like that too.”
“Dya think?”
“Indeed I do!”
“No…..dya think dat…….one day when I am all grown up dat I will be being……a…da, .a… da, …..a…da…...”
“Be what dear? A dad?”
“Adorable?”

Wednesday, August 12, 2009

Get with the programme

After losing "11,000 words" into the ether I am more than severely miffed. So I’ll just share a quicky whilst I play catch up.

I’m not sure if it’s an American thing or a Californian thing but I think the whole world recognizes it. You have to imagine a teenage girl, an American of course. She is probably dressed in whatever is the current fashion for teenage girls and wears a whole heap of attitude. It’s an attitude full of confidence and entitlement. It’s encapsulated in a Bratz doll but I believe it’s universal. These young women have a few stock phrases which they exchange with other young women of their ilk. They all understand each other although these few phrases may seem like an overly brief shorthand to an older generation. Can you see it? Can you hear it? Are we on the same page?

So, I come bounding down the stairs and bowl into the kitchen where I see my son standing on the counter in bare feet, legs astride with both hands clutching a cereal bowl. I am just about to launch into my well worn and slightly tedious script when he cuts me off. I hear it, a little voice with a big attitude, “hello! Need a lil help here!”


And don't forget to add your name to the "book giveaway."

Tuesday, August 11, 2009

Back up

5 Minutes for Special Needs


Yesterday I had a bit of a flip out when I found I'd lost 11,000 words from my file.




But no longer.......new external hard drive!









If you enjoy caption competitions and photographs, you may wish to nip along to"DJ Kirkby" over at "Chez Aspie" and test your brain power.



And don't forget to add your name to the "book giveaway."

Monday, August 10, 2009

Take a walk on the wild side

Tackle It Tuesday Meme

Try This Tuesday






The Scribbit Message Board

I don’t know about you but at this time of year I like to kick back a try a little escapism in my summer reading. So I’d like to challenge you to step into someone else’s shoes, just for a couple of hundred and sixty three pages. Generally speaking my first choice would be a whodunit, preferably one I can solve myself well before the end but not too soon after the first few chapters. That’s my kind of escapism from what I am apt to call ‘my miserable existence.’ Although I call it that, it’s because I love a good moan and I am so exceptionally good at it too. I could take up grumbling professionally, a second career and then rub my mucky hands on the glass ceiling when I bump my head on it. That said, every once in a while you come across a life changing story, like Vicki Forman’s ‘A Lovely Life, a memoir of premature motherhood.’ If you should happen to come across such a story it can be sobering to realize that it’s not a story, it’s true. If you read a true account of someone else’s life, even if you are an expert moaner, it may just be that you might gain a different perspective on your plight. I did. Will you?

If you would like the chance to win a free copy of Vicki’s book, signed by the author herself, all you have to do is read the “review” over “here” and leave a comment there, or here as the linky thing is bust. I’ll send them all along to her together with the winner’s name to be announced on Tuesday 1st September. You could invite your chum to join in too, you know the one, the misery guts who never has a good word to say about anything.

Wouldn’t that be subtle?

This might be a good one to stumble or tweet to help spread the word, should anyone feel so inclined?

Sunday, August 09, 2009

Monday again



Hosted by "Tracy" at "Mother May I," but the photo-picture below will whizz you right there with one click.

Just call me snap happy.

red BSM Button





Photobucket

A bit of a book recommendation for any budding artists that you might happen to have skulling around your home:-





Here's where we are now.



It has a whole section on facial expressions which I highly recommend for obvious reasons.


If you have any advice or experience of "elder care," "Nonna" and "I" would be most grateful for your input.


Saturday, August 08, 2009

Kelly Harland, A will of his Own

‘Reflections on parenting a child with autism.’



http://www.jkp.com/pics/books/2007/978-1-84310-869-6-sm.jpg


Firstly I must declare my bias. In recent years I have come to love the genre of the short story. "Kelly’s" delightful book is a series of vinettes. Perfect bite sized pieces of autism. Easily digestible in small doses for those of us who are short on time. My copy is the "revised" edition. I imagine that many of them could be read independently and out of sequence as each one stands in it’s own right. I’m guessing of course but I can see how these pieces could easily be read aloud. In ‘A will of his own’ the author’s melodic tones capture snapshots of her son from his early days and onwards as he grows and develops into a young man. It’s no accident that Kelly is a "musician" as her voice as a writer comes over as a warm and affectionate melody. To be frank I find it difficult to be dispassionate and impartial about the subject of autism because of my own personal experiences. However, I believe Kelly’s writing style clearly exposes a picture of her son that is accessible to everyone. I have a keen eye for jargon and technical language as it can be off-putting to those not in the know, but her words and use of language merely flowed to tell a story in context. It is a slim volume full of delicate, poignant insights but with the strength of powerfully honed reality.

It is available from "Jessica Kingsley Publishers" and "Amazon" just to name just a couple.

A Regular Guy by Laura Shumaker, a book review

Spoiler:

http://www.laurashumaker.com/wp-content/uploads/ls-015-396x576.jpg


This is not a book where everyone lives happily ever after.

If you write and publish a book about your personal life you automatically expose yourself to criticism. If you write an accurate and honest account of your personal life, warts and all, you expose yourself to even greater criticism. So I shall be the first to launch the attack.

But let’s back up a bit. Let’s be frank here. There are so many books on the subject of autism, a deluge, that it’s sometimes hard to spot the good ones. These days I positively avoid reading anything about autism as I am heartily sick to death of all the tales of woe and misery. I also dislike warped distortions of autism where everything is fun and games. I’m looking for balance and realism.

But I digress. Back to Laura and her book “A Regular Guy,” growing up with autism, a family’s story of love and acceptance.

It’s a promising start.

The book starts at the beginning and the story gradually develops chronologically but before too long, it becomes all too obvious:-

Laura is a big ol’ cry baby!

There!

It seems that every few pages she bursts into tears. She doesn’t know the meaning of ‘emotionally repressed,’ or if she does, she certainly doesn’t put it into practice. But that’s because Laura is a good sharer and a truth teller, a fairly heady combination. Bear in mind that every few pages represents a skip in time which considerably reduces her ‘year per weeping ratio,’ especially if you compare it to her ‘laughter per day ratio.’ She has cartloads of that too. More importantly, her ready wit, private asides and singular voice must surely touch even the most callous of readers, such as myself.

I suspect I know the reason why Laura is apt to blub so often. I’d posit an idea that doesn’t receive much air time. It goes like this:- you become a parent of a child and have great expectations. Sometime after that you become a parent with different expectations. Sometimes that transition merely warrants a one liner for some parents.

Good luck to them.

Others share their journey of a life time, in many chapters. As often as not, this is captured in the term ‘emotional rollercoaster.’ Thus far all is well and good, within our range of comprehension. The bit that’s left out, is the everything else. Everything else isn’t just family, friends and community, it is just that, the everything else. The autism experience does not exist in a vacuum, the roller coaster is in full swing, but the world keeps turning. There are jobs and careers, commitments, finance, paperwork, all the daily detritus of life either piling up or dealt with. Either way the pressure is on and doesn’t let up. The cliché of the human existence is that at the end of the day we dwell upon the things we did not do, or the things we could have done better or that we did badly, before it all begins again the next day. These days go on forever because we cannot escape life to focus on autism exclusively. Autism has to fit in with everything else and often it doesn’t.

It is the ability to live in these two worlds at the same time, to help them fit together better that takes determination, strength and stamina. This is what parental responsibility is all about, we have to be grown ups. As grown ups we juggle all these different things, we manage, and some people excel. In the midst of the permanent juggling act, something additional falls into the mix, something tiny, something huge, something unexpected and you have a choice, burst into tears or laugh your head off. The ability to do either or sometimes both, is the path to survival and Laura demonstrates this with perfection. It’s hard to encapsulate life with autism, but this may be as close a picture as possible.

Spoiler :-
This is a book were everyone continues to live their lives to the fullest.

Available from "Amazon" with more details "here." Here's a less biased "review."

This Lovely Life by Vicki Forman

http://www.literarymama.com/images/books/thislovelylife.jpg


A memoir of premature motherhood

I have done my very best since day one to consistently complain and grumble about autism. Indeed I would go so far as to suggest that I have reached a certain degree of expertise on the subject, on moaning that is, rather than autism.

I remember quite clearly the moment that my world fell apart. It happened on quite an ordinarily autistic day in the park, when all of a sudden my son fell out of the play structure onto his head. As he vomited in the Emergency Room and they wheeled him away for an MRI the nurse told me to ‘brace myself.’ Instead of having an autistic child I was threatened with a replacement, a seriously physically and mentally ill child. Without question it was the most sobering moment of my life.

When the nurse returned, much, much later, she told me she had never seen anything like it, outstanding, remarkable. In all her twenty years as a nurse. He was back from the brink. I had aged a hundred years in those blank, bleak moments. I should never wish to experience anything remotely like it again, ever. After that shocking episode we went on to enjoy robust health and live happily ever after. I cannot conceive of enduring that amount of mental energy for years as Vicki Forman and her family did, when their twins Ellie and Evan were born prematurely. Not only did she experience this pain but she also wrote about it in her book “This Lovely Life.”

I found this a harrowing account of tumultuous chaos but thoroughly absorbing as a reader. It is a tribute to her outstanding and formidable writing style that her book, however ironically, is a true page turner. As a reader, we are safe in the knowledge that the experience of pain is vicarious, not real for us, surreal for her and yet we are drawn further and further in to catch a glimpse of suffering that no-one should ever have to live through. It would be tempting to describe this book as an unrelenting tale of misery but that would be both untrue and a distortion. Every time you think that things cannot get any worse, they do but that is very far from the whole picture. Somehow, by some mercurial quality, Vickie relates their triumphs with pin pricks of startling light that keep us ever hopeful.

My one criticism is a personal one. The book is sprinkled with extracts from the journal she kept during this period of her life. I do not understand why journal entries should be any more poignant than any other writings that create a book but to read those entries was somehow even more excruciating. Maybe it is because reading someone’s memoir appears to grant the reader the permission, provides justification however spurious, to be a fly on the wall, but to read lines from a diary confirms that the reader is an interloper, peeking at someone else’s privacy, a true voyeur.

That said, I should like everyone to read this book, everyone like me and everyone who is different from me, but how to make that happen?

I decided to canvas opinion, male opinion. I asked my husband, a non reader if ever there was one, what drew him to read his annual book? The last book he read was ‘Kon-Tiki: Across the Pacific in a Raft’ by Thor Heyerdahl. Six men on a small raft sail four thousand miles across the Pacific Ocean, from Peru to the Polynesian Islands. I’m inclined to ask ‘why?’ Why set sail in a raft, a small one at that? Why write a book about it? Why would anyone want to read about it? So I ask him my ‘why’s?’
“Because it was a real life and true challenge, because the story was enthralling, absorbing, thought provoking.”
“What if they hadn’t been successful? What if they’d failed? What if the raft had sunk or someone was lost at sea? If tragedy had befallen them, would you still have read and enjoyed the book?”
“Yes?”
“And I know why, because it’s the journey my friend, the journey and that journey will haunt me for a very long time.”




You may wish to read some more about this "book" which you may do so here at "Fully Caffeinated" where "Carrie" asks "Vicki" a few interesting, previously unasked "questions. There is also another independent interview on "Hopeful Parents" by "Christina Shaver."

p.s. There is also a brief interview of Vicki on "ABC."

Friday, August 07, 2009

Figure it out?

Slurping Life



Get the code:-
Cut and paste
from this little
boxy thing below




Now this made me very happy after I'd stubbed my bare feet on heaps of abandoned bricks. But I couldn't work out just why they were underneath the table in front of his seat.



Then I shifted gears:- Brake, clutch, accelerator.





"Nonna" and I are gaining "ground."

Thursday, August 06, 2009

Half way there?

And where would that be I wonder? And I wonder a lot. There’s a lot of wonder around because we are currently enjoying an abundant harvest of words and phrases. Complicated words and a lot of pithy phrases. As often as not, it’s quite enchanting. I consider myself to be a reasonable conversationalist, given ideal circumstances, but when the ideal circumstances evaporate I find I am on more tricky terrain. The trouble with conversation is that it is so interwoven with social skills. You can have all the right words but unless you’re good at sewing, the effect can be very patchy, though none the less charming.

So we are busy, early in the morning, when words often flow more freely. I gather the troops for breakfast where a heated discussion ensues regarding the inferior menu. I am in mid sentence when my son interjects, “so mom?” I pause for breath and look at him because his eyes and attention are upon me. Such a treat.
“Yes dear?”
“So…….since we’re on the subject of clay….”
Clay? But it’s such a perfect interruption, just the right tone, just the right bright inflection, flawless. “Meet Claydol!” he flourishes as he whips a Pokemon trading card into my field of vision. Sold to the mum with feet of clay in fluffy slippers.

Wednesday, August 05, 2009

Supercharged



I hold it up so that all 5 of the adults in the house have a clear view.
“See this?”
“Yup. What about it? What is it?”
“Guess?”
“It’s a hose…….vacuum hose.”
“Right.”
“So?”
“If you see it anywhere, anywhere at all, nab it. I need it.”
“?”
“I can’t keep the dog hair and car fur under control without it if the asthmatics are going to survive another 24 hours.”
“?”
“He keeps swiping it. Pulls the hoover out of the closet and takes off the hose.”
“Why? What on earth is he on now?”
“It’s his tail.”
“Tail?”
“He’s still ‘part cat.’”
“What has being ‘part cat’ got to do with taking the vacuum hose?”
“He’s morphed. No longer is he ‘part cat’ now he is ‘robocat. Teamwork! A united front! I need your help!”
“Hmmm…….. pity you can’t whip out his battery when he’s not looking!”


p.s. dear chums and pals, I have searched in vain for blogs where people’s lives are affected by "Alzheimer’s" or "Dementia," admittedly briefly, and do you know what, I can’t find any. A long time ago I doubted that there were any blogs about autism, but of course there are loads. If you happen to come across any blogs on the former topic I should be most grateful if you could tip me off / give me a shove in the right direction as we all know that the support of an online community is a big boost to the morale.

Tuesday, August 04, 2009

What is that? Indigestible!

5 Minutes for Special Needs





I coax my son.

"Have a go. You may just like it."
"Bleah!"
"I know you don't like butter but this is different."
"Bleah!"
"It can count as your new food for the day if you like?"
"Bleah!"
"That's vinegar. Remember you like salt and vinegar crisps now?"
"Bleah!"
"You could have this instead of butter, every night."
"Bleah!"
"It's so much better for you."
"Bleah!"
"And it will help fatten you up."
"Bleah!"
"I thought you said you wanted to be fatter? Didn't we agree?"
"Bleah!"
"Just dip the corner of your bread in. You don't even have to get your fingers dirty."
"Bleah!"
"I don't understand? I thought you were willing to have a go?"
"I wuz."
"Great! Off you go then."
"Not now."
"Why not now?"
"Because......it is different now."
"What's different now?"
"Dah oil and dah vinegar."
"What's different about them now than when they were in the bottle?"
"Dah shaping."
"What shaping?"
"It's bad."
"What's bad?"
"MOM!"
"Yes dear?"
"Don you get it?"
"Er.....no......no I don't get it."
"I cannot be eating of dah parallelogram."
"!"














If you enjoy caption competitions and photographs, you may wish to nip along to"DJ Kirkby" over at "Chez Aspie" and test your brain power.

Monday, August 03, 2009

How to make a coiled basket

Tackle It Tuesday Meme

Try This Tuesday


You will need:-
plastic darning needle
rope or washing line
scraps of fabric torn into strips
glue if you're a bad coiler!

It's the beginning bit and the end bit that are the most tricky.




You can find helpful step by step instructions at this site called "craft yarn council" of variations at "Craftypod" as well as variations at "DIY"





Yup short and sweet.



Probably not suitable for younger people but I'm hoping it will prove to be a useful occupational therapy for an older pair of hands.


Hence I'm a couple of Christmas presents ahead and it's only August but I have a suspicion that it's all "downhill" from now "on."

Wish me "luck," I'm going to "need" all the help I can "get."


Sunday, August 02, 2009

The family that reads together



Hosted by "Tracy" at "Mother May I," but the photo-picture below will whizz you right there with one click.

Just call me snap happy.

red BSM Button





Photobucket





Saturday, August 01, 2009

Onwards and upwards

Conversation can be a little stilted around here despite all the speech therapy, practice and encouragement. Whilst we’re lucky that their receptive language, what they understand, is so much better than their expressive language, what they are able to articulate, it still doesn’t come easy. The latest campaign regarding table manners and prepositions flounders, primarily because by dinner time my ability to make things fun is a bit feeble. On the other hand the reading campaign is an undoubted success. Although they prefer cartoon strips given a choice, it’s a choice that’s just fine by me. That said the new trend is most disconcerting. The new trend consists of expressing emotions verbally, straight from the cartoons. Things like ‘zoinks!’ for I’ve just had a bright idea, together with artificial hand gestures or ‘Ahhh EEEEE’ with bared teeth for ‘you surprised me and worst of all, ‘Sighhhhh’ together with a rapidly deflating body posture that says it all, and more. But we trundle on regardless.

“You see it there?”
Silence.
“The salt cellar?”
Silence.
“NEXT to the pepper, the brown one. See it?”
Silence.
“The white one?”
Silence. I attempt hand gestures for emphasis and clarity but merely achieve air traffic controller status, which is not generally helpful at the dinner table.
“Just BEHIND the water jug?”
“Remember our good table manners about passing things to people who can’t reach?”
Silence.
“You know……so they don’t have to stretch because stretching is rude.”
“Sighhhhhhh…..”
“Could you just reach out your hand to touch it?”
“Wot did your last slave die of?”
“!”

Friday, July 31, 2009

Slurping Life



Get the code:-
Cut and paste
from this little
boxy thing below






They have the most fun in here but it wasn't always so.

Thursday, July 30, 2009

Shopping allergy - the glass is half empty



Like many other consumers I have a strong aversion to shopping, it practically brings me out in hives. My mother confirms that I have always been a very bad shopper or more accurately, bad company and morose and grumbly, although not necessarily in that order. I think that my first hand experiences of the activity have always been negative. I shop badly therefore I hate shopping or possibly the other way around. That said my family demands, quite unreasonably, that I continue to be the primary shopper even though I continuously demonstrate my miserable failures.

Towit.

Recently after an unexpected spate of independence and “I do it by myself” our glassware collection has suffered. It has suffered to the extent that we were reaching the bottom of the barrel, chipped cups and those without handles. Action time had arrived.

Hence I sallied forth into the tortuous throes of Target wherefore to buy plastic, or some other unbreakable replacements. As usual I was harried, harassed and haunted through the aisles by a wide variety of helpers, some employees and some mere hangers on. Nevertheless I retuned home having achieve task completion and purse emptiness. 8 new plastic glasses for the princely and outrageous sum of $1.99 each. Plus sales tax.

I spent a goodly amount of time removing unremovable labels as anything with a label is guaranteed to cause mayhem. As it turned out the investment was a bust for several different reasons.

Firstly design fault. They have concave bottoms which means that when you turn them upside down in the dish washer they collect water. Secondly, they are brown[ish]. I have recently learned that brown will not do. Whilst it’s not a universal opinion, it’s the majority opinion, 5:3 against.

These two faults, in and of themselves, are not fatal. The third fault is fatal. I witness the third fault as my eldest daughter reasons with my youngest son as he hares across the lawn to escape:-

“Hey come back here! You said you wanted water! Here’s your water!”
“Aghhhhhh.”
“What’s up? There’s no ice in it.”
“Aghhhhhh.”
“Come along now. Use your words. Help me understand. What’s the problem?”
“Bad.”
“It’s not bad it’s straight from the tap. Honest it’s not chilled.”
“Super bad stinky.”
“It’s fresh, really. I wouldn’t lie to you.”
“Super bad stinky peanut poison.”
“Peanuts?”
“Super bad stinky peanut poison pukey.”
“It’s not. Look! It’s fresh and sparkly and cool and…..”
“Super bad stinky peanut poison pukey so I’m gonna die.”
“I don’t get it? Come on. It’s in this nice new glass.”
“Aghhhhhhhh.”
“Oh……..it’s the glass? What’s wrong with the glass? It’s new. Don’t you like it? I mean…….what’s wrong with the glass, apart from being brown?”
“Dah glass……..is………smelled……super bad stinky peanut poison pukey.” I watch her recoil from the blast of 50 decibels. I watch her sniff the glass. I watch her open her mouth to speak as her little brother curls himself up into an impenetrable nut. She comes back inside and pops the glass on the counter, “do you know what?”
“What dear?”
“He’s absolutely right.”
“!”


p.s. does anyone know of a 'scratch and sniff' plugin or widget?

Disclaimer:- I am currently reading [amongst other things] Laura Shumaker’s ‘A regular Guy,’ Kelly Harland’s ‘A will of his Own,’ and Vicki Forman’s ‘This Lovely Life,’ at the same time. Not in tandem but in tricycle which makes for an especially interesting mind bending experience. I find the comparisons and contrasts between motherhood of a child with serious medical issues quite overwhelming, as that kind of mental torture is of an entirely new order for me. Kelly and Laura’s books on the familiar autism track seems more like a trip down memory lane, much safer territory for those of us who need our sleep.

What kind of idiot would choose to read all three simultaneously?

Me.

I’d like to blame it on happenstance or maybe catch-up, but if truth be told, I am worried about the future, as most parents are. Since I lack a crystal ball, an oversight if ever there was one, instead I make do with glimpses into other people’s future and remain hopeful.

Wednesday, July 29, 2009

Blogging 101 – how to deal with negative comments?

I have been blogging for far too long now. Because I’m a member of the "Autism Hub," a small yet inclusive group, I have noticed how quickly we can act together from all around the world with an alternative perspective from the mainstream. Negative comments, abuse and criticism are generally infrequent, thankfully. Since I am a technically challenged person, I shall keep my opinions personal.

Every once in a while I too have experienced negative comments. Without exception, the author has always been Anon. Anon is a busy person with strong opinions and anxious to share their superior viewpoint.

When I first started blogging I was very trepidatious, worried that the sword of Damocles would fall on my head. It didn’t. I grew bolder. As I grew in confidence I shared more and more, perhaps too much on some occasions. On one particular occasion I bared my soul to share what I considered to be a poignant moment in our family life, one that had great meaning to me. It was back from when my children had very few words. There were so few words that I actually counted how many words they used in any given day so that I could keep track, so rare, so few, so precious. You can read it here called “cracking the code” if you have a mind, although my style has changed considerably.

There were three comments for that posting and one of them, of course, was from 'Anon' who said 'This child will never have respect for you if you keep your world centered on him.' You can read at the end of the "post.”

When I read that comment I was aghast. It seemed so obscure, so completely off topic and it made me realize how difficult it can be to translate our tiny little lives into something that can be understood by other people, people in the mainstream world. The tiny occurrences in our lives are often momentous, but to other people they are commonplace and not worthy of note. A tricky translation.

At the same time, it also made me realize how far I had deviated from the mainstream world.

Respect!

Respect? Of all the many things that I hope for from my children, I’m afraid that ‘respect’ doesn’t even make it to the list. Originally, pre-birth, I hoped that my children would be happy, healthy and normal. Just that. No more ambitious than that. It’s quite a tall order in today’s world. We have “happy.’ We have ‘healthy.’ ‘Normal’ is only a question of definition.

Tuesday, July 28, 2009

The cookie wars

5 Minutes for Special Needs



A little voice calls me, "Mom! He is fight wiv himself!"







I think perhaps resistance is futile.




If you enjoy caption competitions and photographs, you may wish to nip along to"DJ Kirkby" over at "Chez Aspie" and test your brain power.

Monday, July 27, 2009

How to Make your Own Mouse

Tackle It Tuesday Meme
Try This Tuesday





You will need;-
A 12 inch square of felt
Another scrap of felt for the shawl
A scrap of thick yarn for the tail [knot both ends]
stuffing
Two small buttons for eyes [optional]
Sewing thread and needle
Scrap of fabric for the skirt
Scissors





Cut out the shapes in felt from the template
Sew up the back [curved] seam
Insert the stuffing
Stitch the circle on the base inserting the yarn as a tail and check that the mouse stands upright



[Understuffed will produce a concave base which is much more likely to remain standing]

Sew on the buttons [or stitch eyes in place so that it would be safe for a baby]
Stitch the whiskers and ears [folded]
Hem, join and stitch a drawstring runner through the top of the strip
Gather the strip and attach to the middle of the mouse
Cut the scrap of felt into a triangle and snip the edge to make a fringe, stitch in place









Voila!

A Tale of Foolishness:-
The why? Why bother to make your own mouse when you can buy a dozen from Petco at $3.99?

Well as you may recall, currently my son is still at the ‘part cat’ stage of development but loathes the smell of catnip. Anyway whilst we were at Longleat in England he fell in love with a very similar mouse, a mouse manufactured for the princely sum of many pounds sterling. I resisted the purchase and a great pall of gloom descended upon us. The only reason I managed to extract him from Longleat at all, was the faithful promise that I would indeed, given time, produce a mouse. It was so tempting to indulge him especially as he mewed so pitifully but apart from anything else, Longleat’s version was a doorstop and hence it was weighted down with a hefty rock inside, not ideal for international travelers with a weight limit!

In addition, we endure a daily craft during the summer holidays. In this instance we were able to introduce the concept that a sewing needle is not necessarily an instrument of torture but may indeed be the means of achieving the current motivational goal, a mouse. Fine motor skills limitations meant that he was an observer rather than a sewer, but he managed to remain within the same room and peek through his fingers at the scene. Clearly most crafts can be adapted to suit the individual needs of any particular child, but if we achieve joint attention then we’re on a winner, which indeed we did. He was quite happy to stuff the mouse so we did have a little hands on experience.

Of course, if I had been more sensible I would have saved myself a whole heap of bother by not going into the shop in the first place. This is one of the reasons why so many parents of autistic children become hermits, it's just easier that way. However, we continue to venture forth as the easy option is not always available.

Lastly, I know that this kind of parental indulgence frequently evokes criticism, maybe you have been on the receiving end yourself? All I would say is that people who criticize, [usually 'Anon'] generally do not have first hand experience, long term with autistic people. If you actually live with an autistic person who has no interest in anything, or maybe only one or two things, to the exclusion of all other things, then part of a parent’s job is to help expand those interests, gently and gradually. Our job is not to eliminate the one or two special interests, that would certainly be a mistake, unkind and probably cruel. No, instead we offer all and everything that we can think of to tempt them into other things. Given time and encouragement there may just be a tiny little spark and it is those little sparks that ignite us into action, no matter how trivial or obscure. I tell you truly, it’s worth every effort.



This design is available in an out of print book called "My Learn to Sew Book." It is a bit dated but has easy to follow instructions.



 
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