I have moved over to WhittereronAutism.com. Please follow the link to find me there. Hope to see you after the jump! :)
Showing posts with label progress. Show all posts
Showing posts with label progress. Show all posts

Saturday, September 20, 2008

Smiley Saturday

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It’s quite a challenge really.

Following last week’s first attempt to find something to smile about, this probably means that I have to crank up the pressure and delve even deeper to find something else to smile about

So it’s Thursday as I write and not so much as a snigger in sight nor even further in mind. I wish I could pod cast the telephone message I received yesterday, as that was definitely of very high snorting value. What else? Surely there must be some little nugget buried away somewhere?

Ah yes! A nugget.

We were outside in the garden so that my engineering type could explain my errors with the "irrigation system." There was a flower pot full of all the hardware, screws, piping, little widgety things that control the water flow and my son was sitting nearby playing with his Pokemon.




He explained that there were two types of widget, one that dripped and one that squirted and I’d bought the wrong ones. They looked exactly the same to me, so he picked up one of each and examined them to explain the differences when my son perked up and said “one is being pointy wiv a lil spot hole and one is being long wiv a big hole in dah middle.”

He wasn’t even looking at the parts.

It reminded me of several things, his visual acuity, his ability to appear to be absorbed in something else and supposedly oblivious to other people’s doings and the other thing…..you know………that thing about……….there’s none so blind……

Sorry my numb is brain!

Aha! I’ve just thought of something else when I posted these photos earlier this morning. I have a second thing that made me grin.

It’s a bit like the back story to the "photos."

It was such a hot muggy day, yes I know, England does have the occasional stiflingly sticky day.

Back then they were so small.

We were having an ‘outing’ on one of our first family trips to England. It was not a happy time. My children are like fine wine and do not travel well. We were still at the stage where the boys were physically attached to me 99% of the time. They were either in the double stroller or being carried. Walking anywhere were virtually impossible.

I had been carrying one or both for several hours. I was completely exhausted and mystified by their misery. My husband constantly told me not to carry them, but I never listened.

I concluded that it was probably my own attitude, grumpy, that was bringing everyone down. I decided to lighten up, both physically and mentally. We would play a game. Run down the path in a race to get out of the sun and into the shade. It would be fun. I would break the spell and happy innocent laughter would bubble up from the well spring.

I briefed them all. I made sure I had everyone’s attention first. I was lively, animated, joyful, teasing, clear in my message. No-one would die from a few minutes separation. Then I legged it.

I waited at the foot of the steps and took photos of their happy progress.

I could hear them. Oh could I ever hear them. Everyone could hear them. Surely some child was being skewered by a monster as their cries of agony percolated through the fetid air.

Of course they never ‘arrived.’

As usual I had to submit, defeated, but boy have they come a long way since then, positively leaping now.

More of a gem than a nugget.

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Monday, August 06, 2007

Oral defensiveness and budgetary control

















Many, many lifetimes ago, I was a purist. My first born child lived on a diet of ambrosia. [translation = organic, fresh produce, lovingly prepared without salt or any other pollutants] Sugar was an unknown substance to her. It is directly because of this mistake that I now suffer the consequences.

My youngest son, now aged 6 and a half protects his mouth, because he has oral defensiveness. This symptom is one of many that an autistic child may or may not have. [translation = optional extra with no additional charge] He is also neophobic. [translation = fears food] His bravery in the food department has grown considerably over the last few years following early intervention to help de-sensitize his mouth. Instead of only eating three foods [Goldfish, Cheerios and milk] he now enjoys a relatively vast panoply of some 17 foods. [translation = when he reaches 21 'foods,' he can cast off the label ‘neophobic,’ as the cut off is 20] Yes, it’s true. Very soon he will graduate from ‘neophobic’ to ‘picky eater.’ Horray!


In the meantime, I have other pressing concerns, namely cost. Some six months ago I stopped reveling in the delight of watching my son eat his 13th food. [translation = baby oatmeal] I no longer concerned myself with the pleasure of knowing that he was consuming 4 ounces of milk along with the dreaded baby oatmeal. I was growing tired of experimenting with different coloured, expensive, sprinkles and sugars, to dust the surface and entice his tastebuds and lure his eyes. Why was I buying little packets of very expensive baby oatmeal for a 6 year old? This behaviour had to stop. Those packets, even the very big ones, are very small. This means that they are also very expensive. [translation = because they are little] If you are six years old with a big tummy, not a baby tummy, you can write off a packet every five days. At $3.99 a pop, such extravagance had to cease! [translation = if not forthwith, then at least lets make a start]

I stole some of spouse’s Quaker Oats, big boy food that is especially good for those with diabetes, heart conditions, high cholesterol and weight issues. In order to make oatmeal, [translation = porridge] the chef must grind those rolled oats to dust. This provided me with my aerobic workout for the day. It still had ‘bits’ but they were little bits, not big bits.




I am happy to report that after six months of de-sensitization, Junior will now consume porridge. We have yet to go ‘cold turkey’ on the sugar sprinkles, but we’re moving in the right direction.

Whilst shopping in the supermarket, my little eye, spied a handy dandy convenient alternative. Individual sachets of different flavoured porridge with all kinds of enticements therein, such as sugar dinosaurs. Admittedly, dinosaurs are a thing of the past in this household, [translation = extinct on the planet and extinguished at home] but there is always an outside chance that we can tempt him in to pastures new.[translation = try anything once]

“He ain’t gonna eat it Mom!” she says succinctly, as I sit in my usual position. [translation – next to my son with a teaspoon quarter loaded in what I hope is an attractive manner]
“Who could resist that cute little red dinosaur or that winkum dinkum little yellow egg!” I ask rhetorically. She doesn’t answer, merely rolls her eyes and gently shakes her head.

My son sits in his carver chair [translation = caged to the table] His knees are curled up to his chin. His arms wrap themselves around his legs leaving his hands free to be clamped over his mouth. He has double protection, as the right hand fans out over the left hand. Just in case I have devious plans, his eyes are squeezed tight shut. The spit bowl is strategically placed at the point on the table where his elbow might be, if his elbows were not already tucked neatly into his sides. I couldn’t have done a better job myself even if I had put him in a straight jacket. He is as neatly coiled as a spring.

My older son continues to eat his Weetabix with a fork, slowly, but feels the need to add his two pennarth. “I dun fink he is gonna eat it either!”
“Well thank you for sharing guys!”

This has been the daily scene for some ten days now. Six months to go from baby oatmeal to adult porridge. How long to go from porridge with sugar sprinkles, to porridge adulterated with other substances? I begin to wonder if this campaign is an improvement or merely cyclical? Whilst wholesome mothers of the world serve their offspring the best that money and effort can provide, I, on the other hand, am rocketing my own son into the somewhat murky world of dental caries. Is one flake of oats beneficial if accompanied by it's own weight in sugar? [translation = logic and mathematical challenge of the century]

I remember the penniless student at University. He decided to save money and made up a vat of porridge which he poured into the top drawer of his desk. After several weeks of this exclusive mono diet, he was carted off to hospital with a severe case of Rickets. I wonder which is better, Rickets, achieving adulthood but without the benefit of teeth or malnutrition if not death? My arm begins to ache and draws me back to the matter at hand.



Her fingers toy with my tools of the trade. The face cloth that is now cooling, the vibrating spoon, all used to de-sensitize his face and mouth prior to his ordeal. “How long do yah think it’s gonna be this time?” she asks distractedly, glancing at the window. She continues, “you know you’ve forgotten the tick chart, or shall we use stickers or stamps?” [translation = additional motivational tools for the truly desperate] I look at my daughter who will be ten in 6 months. “I’d forgotten about those dear, thank you! What do you think? Which one shall we use?”

Junior interjects and unravels to announce his own solution, the lowest common denominator, “I know! We be doing dah tick chart wiv dah stamps AND dah M&M's for each mouthful I am being swallowed in my tummy.” [translation = as opposed to spat out]

Lummy! Things really have improved! [translation = the M&M days are long gone{faded and finally extinguished}]

It’s just as well that there are other people around to remind me of the full arsenal at my disposal.


So saying, neophobia is one matter, but other people have a whole plethora of food difficulties or an entirely different magnitude as you can see over at my pal "Phantom's" blog at "the Phantom Scribbler."

There again, I'm suffering from a little oral defensiveness "myself."

Thursday, April 26, 2007

Adam and Eve - knowledge begets bounce


I put down my book by Ruth Rendell to think. ["Adam and Eve" and Pinch Me] I contemplate the many ways I have unwittingly tortured my children since babyhood.

All those supposedly innocent little ditties, nursery rhymes and games. We all know them, "round and round the garden," "pinch punch, 1st of the month," "the incy winsy" spider,’…….an endless list. Each and every one of them, has it’s own unique twist of a flick knife, but I didn’t know that at the time. Anyone with more than one brain cell would have cottoned on [translation = realized] that although I tried to engage my children, what I was really doing was beating them with a very large, noisy, prickly stick.

I decided that the ‘oldies’ might not be ‘goldies.’ I even went as far as to purchase a new book on 101 ways to entertain your baby, in the hope that I could improve my skill set and become a little more up to date. As with most things I tried in those days, it was another unmitigated failure. It seemed that there was nothing I could do to induce a smile. Their happiness quotient was independent of my input. Indeed it would be more accurate to say that most of their misery was caused directly by me, no matter how innocently. [translation = ignorantly] It seemed impossible to teach a "primigravidae" [translation = old first time mum] new tricks. [note 1 below]

But of course, that was a long time ago now. I re-evaluate the ditty – Adam and Eve and Pinch Me, went down to the river to bathe. Adam and Eve were drowned. Who do you think was saved? And the response is……altogether now….. ‘pinch me!’ Then you pinch them and everybody laughs, or most people do, especially little people.

As with most things, what was true a week or two ago, [translation = or month, or year] is not necessarily true now. I wonder if it’s worth having another go? What is the likelihood of meltdowns? How many people will have meltdowns? Will they be really, really bad meltdowns, simultaneous ones? Maybe I’ll be really lucky and they’ll just ignore me, or not get it, or be indifferent? I strategize timing factors, variables such as their current mood, their absorption in their activities, as I don’t want my ‘intervention’ to become an interruption or present itself as a transition. [translation = stop one thing and start another]

I dither a wee while until the moment presents itself. They are at the table for dinner. I have read several picture books to entertain them and distract them from the hideousness that is dinner. They are mellow. [ish] I tentatively suggest a change of tactic, a minor diversion from story telling, a little joke, a tiny one, just for their delectation. There is a fluttering of apprehension, dissent, minor protestations followed by resignations. I capture three pairs of eyes and sputter my way through the lines. I smile. I wait a response. I count. I include 'ands.' Brains in small craniums process words, retrieve others, connect the dots. I can hear them whir, the brains that is to say ....…….

“PERwinch me!” spews junior spraying us all with half masticated wieners as he guffaws.
“Ah!” bellows senior, throwing himself back on his chair to collide with the dresser, hurling sweetcorn kernels in a shower of amusement.
“Huh?!” frowns my daughter……

I pinch her, gently, just because I can.

[note 1] Although I already had a daughter, as far as the medical profession was concerned it was so long ago that my body believed it was the first time I was pregnant. Like a virgin all over again!]

Friday, November 24, 2006

Ear wigging

[translation = listening to other people's conversations]

Senior son, now seven and a half, is considered to have a speech delay of approximately two and a half years. Because he is also autistic, he has many of the classic impairments that distinguish autistic children from the rest of the population. His ability to tune in to the subtleties of sophisticated communication would appear to be limited to a casual observer. [translation = not so the crazed mother trawling for evidence to the contrary]

He tries to show her his report card from school. [translation = impart the pertinent details, the winning of a prize for 'adequate' behaviour]
“Do I get a prize too?” she whines to her brother.
“Yes, but first you gotta do yer chores.” [translation = magnanimous,pragmatic]
“What chores?” Clear evidence of reciprocal exchange where two people communicate with each other.
“Er, um, lemme see now. You gotta tidy yer toys and er, um, what is it, oh yeah, right, clean yer teef and er, um, oh yes, oh yes, put yer perjamas on.” I am stunned to further silence, the right tasks in the right order, and he’s telling her! The same little phrase that I repeat daily, that I have repeated on a daily basis for nearly four months to deaf ears! [translation = wrong again, it does eventually penetrate, lodge and take root] I await further news. He continues in his deep baritone, “when yuv chosen yer prize then we can play together.” Her eyebrows knit, “you’re askin me to play with you?” The superior tone of a California girl, is fully developed. [translation = no I didn't think it would ever happen either dear]
“Sure! You gotta problem wiv dat?” he snaps back, with no delay, the appropriate tone and volume, and yes he was looking at her eyes when he spoke. I check that I’m in the right household.

I am.

“No. I’ve not got a problem, you’re the one with…..” she peters out just in time, whilst I bite my nails down to the quicks.
“Good, so…..get on wiv it den, yer wastin time! Don cha know it’s nearly time fer bed?”

I think I had better go and lie down myself! [translation = before I fall down]

Ref 1] At ages three, four, and five a child's vocabulary rapidly increases, and he or she begins to master the rules of language. These rules include the rules of phonology (speech sounds), morphology (word formation), syntax (sentence formation), semantics (word and sentence meaning), prosody (intonation and rhythm of speech), and pragmatics (effective use of language).

 
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