An uptight Hannibal

Uptight. See Ref 1 below.

More than 8 weeks after surgery I return from yet another inconvenient appointment at the surgeon. The anterior open bite is still there. One tooth touches another, but that’s it; progress nil. As I leave his office, I tap him on the arm with my non-verbal question. "Oh! How many days?" he responds to my waggling digits, "probably 3 to 5 days, then you'll be able to eat again. It's o.k. to hate me for that long," he smiles showing off his own immaculate set of gnashers. I attempt a snarl but think better of it. I calculate, as I nip through the exit door to the car; the most pretigious, experienced, specialist, maxillofacial surgeon on the planet has determined 3 - 5 days, so I double it and add 1.

As I stagger inside and reach for the wipe board, spouse and the children are all there to greet me.
“How did you get on?” I frown in return.
“How come you were so long?” I fumble for a dry erase pen.
“Are you in pain?” Small people bounce around in the frenzy before bed.
“What are you looking for?” I continue to scrabble until I have the means to communicate and write; ‘5 days of this or all is lost!’

What he actually said was that there was a small window of opportunity within which to make the teeth move, otherwise……he didn’t finish his sentence, thankfully.

“Let’s see then!” I part my lips to reveal enough elastic bands to source a small rubber plantation, “Blimey you look like Hannibal Lecter!” he gasps. Three small people peer and cover their mouths in unison. [rats to the theory of mind!]
“Shall I get you some pain killers?”
How exactly am I supposed to insert a tiny pill through this net I wonder?
“Dat is not nice!”
“It certainly isn’t,” spouse concurs.
“No! You are not nice!”
“Me?” he queries.
“Yes, you are dah bad one to say mummy is ‘horrible.’”
“Oh, I didn’t say ‘horrible’ I said ‘Hannibal.’”
“Hannibal is a nice word? It is dah opposite of ‘horrible’?”
“Not exactly.”
“Wot den?”
“Well there was Hannibal the Barbarian, but I didn’t mean him, not for your mother. This particular "Hannibal," is the name of a man in a famous film.”
“Mummy is a man now?”
“No, she looks like the man in the film.”
“Wot man? Wot film it is.”
“Well, it’s about this bad man who likes to….”
I clip him on the head with the wipe board. [translation = for several reasons, not that I ever agree with the principle of "corporal punishment."]

Ref 1 select whichever you deem most appropriate
uptight, a. SECOND EDITION 1989
colloq. and slang (orig. U.S.).

[UP- 3.]
1. a. Of a person: in a state of nervous tension or anxiety; inhibited, worried, ‘on edge’; angry, ‘worked up’ (about something). 
 Quot. 1934 is an isolated early example.
1934 J. M. CAIN Postman always rings Twice xvi. 190 I'm getting up tight now, and I've been thinking about Cora. Do you think she knows I didn't do it? 1966 Sunday Times (Colour Suppl.) 13 Feb. 35/4 Up tight, tense. 1968 Mad LXXVII. 30 ‘Uptight’ means, like, a bad scene. It's when you're hung up, or wigged out, or you can't make it. We all get ‘uptight’ once in a while. 1969 C. YOUNG Todd Dossier 38 He looked worried. Really worried. As the kids say, he was up-tight. 1973 E. CALDWELL Annette (1974) VI. ii. 137 I'd guess you'd gotten so uptight from being denied motherhood that you were ready to leave home. 1975 D. LODGE Changing Places ii. 83 You're feeling all cold and uptight and wishing you hadn't come. 1977 M. EDELMAN Political Lang. v. 90 To the uptight policeman everyone is a potential offender. 1981 P. P. READ Villa Golitsyn II. iv. 112, I was afraid you might be a little uptight about that sort of thing.
b. fig. Characteristically formal in manner or style; correct, strait-laced.
1969 Manch. Guardian Weekly 28 Aug. 18 Who would have thought that an uptight institution like the august Oxford University Press would have done a thing like this? Here is a..spirited and spiritous piece of autobiography..served up as a book. 1970 E. M. BRECHER Sex Researchers ix. 253 They tended to swing in the same socially corrrect, formal, ‘up-tight’ style they followed in their other activities. 1976 Chatelaine (Montreal) Jan. 73/3 In the morning, the apartment looked curiously uptight to Meredith.
2. In approbation: that reaches the desired standard; excellent, fine.
1962 Down Beat Aug. 20/2 Jazz Gene Ammons Up Tight! 1966 [see OUT-OF-SIGHT adj. phr. (n.) 2]. 1969 Courier-Mail (Brisbane) 31 May 11/7 Disc jockeys..talk in a kind of sub-English..as in ‘All right baby sock-it-to-me it's allright uptight yeah.’
3. Short or out of money; ‘broke’.
1967 Time 6 Jan. 18/3 ‘Up tight’ can mean anxious, emotionally involved or broke. 1968 Esquire Apr. 160/3 The expression ‘uptight’, which meant being in financial straits, appeared on the soul scene in the general vicinity of 1953.
Hence uptightness.
1969 FABIAN & BYRNE Groupie vi. 46 The paranoia and savage uptightness which comes from three such guys living on top of each other and attempting to lead very together type lives while being stoned most of the time. 1974 A. LASKI Night Music 95 It hadn't made him any looser..that rigid uptightness was still in him. 1976 New Yorker 8 Mar. 57/3 In [The Entertainer]..Archie contrasted the uptightness of the British who don't make ‘a fuss’ with a fat black woman he once heard in America who sang ‘her heart out to the whole world’.

Early Days 6 - It’s all relative

[From way back when]
Junior son and I have arrived early at school to pick up his brother from his Special Education Day Class, now that he is in First Grade. We're early because it allows him to adjust to the 'new surroundings,' even though it's been a few weeks now. It helps to be first because then additional people arrive gradually. We need to avoid the deluge of a crowd. Another mother and her child are also waiting outside the same door. We join her on the bench and I smile. It’s reciprocated.

I make sure that junior is on the far side of the bench, as far away from her and her son as is physically possible. My son doesn’t look at the other mother, nor her child. He might notice if it was a baby, but toddlers are in the same category as dogs and cats, small creatures that are unpredictable and need to be avoided. He starts to count the holes in the bench; it is a matrix of blue circles. His nose is two inches away from the bench, the holes and his fingers. He can touch it because it is smooth, not hot nor cold, because of the shade on a sunny day. Our awareness of tactile defensiveness and sensory integration grows. I've learned to appreciate these things as we cope with complicated matters like temperature. He counts in a whisper but explodes with “Barnacles!’ when he realizes that he’ll need to start at the beginning again, because he’s not following a mapped path of holes.

The other mother’s son beams hugely at me with large smiling eyes, heavily lashed. He’s still in nappies [translation = diapers.] We mothers start to chat, as we have a good 15 minutes to wait. She tells me about her family, husband and two boys. She’s very open. I know now that her child is not in the class room behind us but in a different, mainstream class. She tells me what a trial the little one is, so energetic “you wouldn’t believe!” she sighs. I would.

Junior’s body starts to push against mine. I know that my bottom is covering the holes that he wants to count. He’s not going to ask me to move, he’s just going to shove my weight out of his path; his 45 lbs is going to move my adult bulk by will power alone. I tap him on the shoulder to get his attention. He keeps pushing, oblivious and absorbed. When I don’t budge, he eventually snaps "wot?” with a "tone of irritation." Many autistic children respond, if at all, inappropriately, or out of proportion. Eventually he glances up at my huge immovable form with annoyance, his face scowls. I catch his eyes but before I can speak he realizes that he’s lost count again “Fish paste!” he bellows hurling himself on the ground, beating it with his fists, kicking up the dust [ translation = dirt.] He wears long sleeves and long trousers in the baking 80 degree heat. He realizes that the bare flesh of his exposed hands, has come in contact with something that he would rather not have contact with. Immediately he is on his tippy toe feet, flapping his arms and rain dancing to shake off the debris. I make brushing gestures over him, being careful to avoid the head area. His head and shoulders are especially sensitive and strictly off limits. He slumps, crestfallen and chin fallen. His eyes fall on the bench and he flops on it to start counting again. This kind of persistence and determination, often form a mesmerizing form of "perseveration," which is calming.

The woman next to me smiles, kindly “he’s a funny little guy!” I pause and glance at her, trying to gauge if it’s worth it. It would seem that I will see her often.
“Actually he’s autistic.”
“What?”
“Autistic, he’s in a special education class, Pre-K. So is his brother, that’s who we’re waiting for, he’s in Mrs. K’s class.”
“He doesn’t look autistic?”
I don’t say anything. We both watch him counting holes; 203, 204,205. He will be five years old in a few months. Her son keeps interrupting, wanting her attention; Watch me! Watch me! Play with me! Play with me!


The loud haler starts crackling, warming up ready for the siren. I move swiftly to the other side of him ready to pounce. The end of the school day is announced. It is very loud, with lots of static. I check whether he is about to meltdown and cover his ears or whether he’s disengaged from the whole world, solely intent on his task. It could go either way, but I’m ready to grab him if he goes hurtling off ears covered, to run blindly towards the traffic; 237, 238, 239. What is the American sporting game where you have to catch the ball just in time? Ah yes! Cricket.

“Really?”
“Really.”
“You’d never know, would you?”

I would now.

A warning to world’s women

Beware! Mother’s Day is coming. [already gone, in Europe where Mothering Sunday is linked to the liturgical calendar]

Kindly women warn their significant others that the day approaches. Martyrs, prefer to remain silent and moan a lot, quietly with breathy sighs. Now you may be the parent of an autistic child, a mother or father perhaps? If you are, you may feel that such warnings have no relevance for you. Whilst you may well be correct and I certainly felt that I was a member of that contingent, last year, I found myself in the relevant group unexpectedly. In fact it is because Mother's Day is still 7 weeks away, the second Sunday in May, that forewarned is fore armed. Some people with fine motor challenges and other complications, need far longer to get their act together.

Last year, I was aware that many of the words I used failed to penetrate. I also failed to appreciate that many of the words that I thought were merely afloat in the ether, had penetrated. The trouble is that you can’t pick and choose which ones lodge and take root.

When your significant other is reminded that ‘the day’ is approaching, he may start to consider what, if anything, might be an appropriate gift or treat for you, the mother of his children. He might, if truly desperate, and most of them are, consult the offspring. For some reason, most autistic children appear to communicate far more effectively with one parent rather than the other. The one parent, often appears to be their father.

The father can extract information from an autistic child that completely escapes the mother, though why this should true, requires further research. But we warned, your children, autistic or otherwise, will recall the most remote and obscure words that you have uttered during their period of life on this earth to date, to delight and bewilder you.

Ergo, when the great day arrives, you need to scour your memory bank, mine for details and have instant accurate recall . That way when you are presented with home made picture of a rainbow, a home made rag for the purpose of cleaning your glasses and a flower picked from your very own garden, then you will know that you are a very lucky woman indeed.

A curious child, who is not named George

I come across one of these beings during a play-date. He has the lingo. He has the looks. Sleek, slim, sharp. A lean, mean, ragamuffin type. A heart breaker in the making. The language of a 13 year old – a tween. All the patter, right tone, correct demeanour, the angle of his chin, the tilt of his face, the tension in his body, the strut and attitude, all perfect. He is an exact replica by design or default. [translation = what some people refer to as high functioning autism and or Asperger Syndrome] He has skills and agility of an athlete – always a highly prized quality this side of the pond. His eye contact is electric, a rare beast indeed. I have never been stared down by an 8 and a half year old.

I transport this child, my own three, and two other play date victims, to our home via the car. My children do not transition well and particularly loathe the car. I must have been completely barmey to think that I could pull this off! [translation = daft as a brush] This poor benighted child suffers surround sound screaming during the 7 minute journey home. Not only is he on sensory overload after a punishing day at school, now this 'only child' experiences a baptism of fire in a multi sibling home. [translation = plus the two other players.]

On arrival, there is a mass exodus, two typically developing girls and four autistic boys. [translation = one over optimistic adult]

I now need eyes in the back of my head as well as every room in the house simultaneously. I watch the one with the light switch obsession, as he flicks it on and off, temporarily confounded, due to the dimmer function. I don't interfere with his perseveration as it seems as good as any other coping mechanism to settle in to new surroundings.

I find that two of the boys 'like' outside, which is unfortunate as I have two 'hot house, never go outside under any circumstances,' versions. One collects ants for the lizard, whilst my son observes through the glass door. He shouts warnings to him, "don be hurted by dah bees! It is Spring! Dere are bees in dah gardin!" I delighted that he is so concerned for his chum's welfare. The child bearing gifts of ants, has an immediately recognisable style of speech. The tone, pitch and prosody are a dead give away; "how old is the lizard? [in minutes] "What type of lizard is he?" [although sex is arbitrary and irrelevant] He doesn't ask what the lizard's name is. I can't decide whether to kiss him or the lizard? ["Gecky"]

Clothes appear to be optional, which would probably be o.k. as we are familiar with the naked tactile defensive side of autism, but a rogue, typically developing girl, who only has sisters, probably should avoid such trauma. I do not wish to deal with the fall out - "Yes mom, I had a great time playing with four naked boys..........!" I feel my brain over heating.

He is long limbed, chiseled, stark and autistic. A chameleon, and a blender. The effect is perfection. You would never know, unless you knew.

Noise, unexpected or predictable, but unfamiliar, is a deficit. The hands flutter like birds, but he’s been taught to correct that ‘fault.’ The chronological demeanour of a teen, the developmental age of 5, maybe 6 year old. He’s as sharp as a tack, as delicate as a soufflé. As hard as a drug dealer, the kind that cuddles rabbits. He is both centuries older and light years younger than any of my children.

His appreciation of right and wrong, rules and the force of restrain, is impeccable. He is verbal, erudite. He corrects my children with the authority of the police, and the compassion on a monk. He is kind, concise and patient with inferiors.

The manners of a diplomat, the speed of a fire cracker. He is scared of cats, but warms to a lizard.

I hate the word ‘awe’ as is it over-used, devalued, almost worthless. But I look at this ‘child/adult’ and breath deeply.

I am uncertain who I am more fearful for, the world at large or this precious individual.

Anyone, anyone at all, who has the powers of persuasion, to get my indoor, passion flower son, out into the garden, is certain to have an impact in a manner that we can only dream of, decidedly sweet dreams.

Early Days 5 - Do not be downcast

A few years back, Junior repeated his school year in his special education class. [translation = retained?] The Pre-K teacher was a speech pathologist by profession and had more than 30 years experience with little chaps and chapesses of my son’s ilk. Tiny modest benchmarks were recorded on his IEP chart. Whilst there was a little tick here and there, other elements seemed to have vanished. Carefully acquired skills had slipped from our grasp. For me, his new achievements were over-shadowed by the thought of the ones that we seemed to have carelessly mislaid somewhere.

I think I was in the ‘generalization’ phase. In case you are unfamiliar with this term, for current purposes, it means that when a child learns a new skill, such as tolerating sand at the beach, in theory, they should also tolerate sand in other situations, such as school, a sand pit in the garden, a washing up bowl full of sand and preferred toys etc. If the tolerance of sand, remains solely at the beach, then he has ‘failed’ to generalize. It felt like a double whammie, not only did he suffer from "tactile defensiveness," but any progress we theoretically made, remained strictly in the geographical location where he first acquired it. He also has a parent whirlizting away on yet another campaign.

At that time, junior’s failure to generalize just about anything, was a cause of deep frustration for me. He learned to eat bananas, but only at home, that is to say, not in the car, not in the garden, [of course] not at school nor the park. I believe I read “Green Eggs and Ham,” until I was the same colour as the eggs, and every bit as cheesed off as that rotting food stuff.

He would hunker down on his favourite, [translation = only chair] whilst I forked slices of banana into his open baby bird mouth. He would not ‘bite’ into the banana and shock his teeth. His hands could not tolerate touching the banana with the skin and the idea of contact with a naked banana would send him into an apopleptic fit. He would not chew the banana but swallowed the lumps whole, as his mastication abilities were as feeble as my own. “No fork, no eat,” were his watch words.

It takes a long time for fork a whole banana into a three and a half year old, three times a day. The time factor features heavily if you are also obliged to spoon feed the five year old his different dinner, at the same time. The combination of the tactile/oral defensive small one, and the sequencing/ co-ordination/fine and gross motor challenged older one, resulted in an ambidextrous mother with very dirty clothes. But "neophobic" was yet to be part of my vocabulary.

His teacher, in her professional capacity, was a remarkably conservative woman for an American. Other parents complained about her enigmatic aura. I am rarely intimidated by other people, mainly because of my inability to recognize or admit to their superiority. As a result, I tend to just plough ahead regardless, as I have discovered that life is just far too short, to be messing about with too many niceties. As she finished off her assessment of his progress, I launched in with my size tens, to quiz her about the losses. Where were they? Where had they gone and why?

Miss E removed he spectacles and pinched the bridge of her nose, as she composed herself. I awaited enlightenment from this stalwart of the teaching profession, universally admired by all her colleagues. She told me, that in her view, children, especially our children, developed in their own unique way. It was her observation, over the years, that growth and progress could be viewed like a corkscrew at a angle - the child seems to be on the up, learning new things, blossoming, happier. Then, for some unaccountable reason, they seemed to spiral down again, slipping over the curve in the corkscrew. She suggested, that when they're in the 'dip,' curling around loop, they are really re-grouping their skills, filing them away, making them secure, a consolidation if you will, until they emerge and rise up the curve again, ready for the next cycle.


I don't know if it's true, certainly not very scientific, but it's a visual that helps me. Not everything has to be ‘true’ to be ‘helpful,’ does it?

I hope this isn't too irritating. I think I would find it irritating, but I find a lot of things annoying. My pal, "Jerry Grasso," suggested it, so we'll blame him instead, or at least I will. If you have not visited this blog before, do not be disorientated by the photograph of the lovely, smiling blond woman. That is not Jerry, as he is the dad, but he's still a jolly good egg.

Ignore the autistic child

Spouse and I haven’t seen each other during waking hours for a considerable period of time. We decide to attempt an adult conversation. [translation = reciprocal exchange] We have many things to catch up, the meaning of life, amongst other things. We commence with ‘other things.’ The first ‘other thing’ for discussion is the problem of the window, the kitchen one. It lets in lots of light, but we’re in California which means that in March although the temperatures outside are in the balmy mid 70’s, within the confines of the window, the temperature tops 101. ‘ Would that we all had such problems!’ I hear you sneer, and well you might, but you see this house is a haven for plant life and plant life curls up it’s toes and dies pretty rapidly when the barometer creeps over 90.

“Well why do you have to grow so many seeds anyway?” he starts unhelpfully. Junior continues to perseverate on the floor between us, at ‘tripping over’ distance. He stabs the floor boards with the green cocktail stick, his favourite colour of the week, or possibly month. [translation = maybe longer] Since it’s made of plastic, we anticipate minimal damage to either himself, or more importantly, the floorboards.


“I grow seeds to save us money dear.”
“How does filling the garden full of flowers that have to be watered, with very expensive water I might add, save us money? Exactly?” Junior mutters to himself as his imaginary letters fail to meet his exacting standards of precision, even though he can’t actually see them.
“Good point! When are we going to fix the sprinkler system? When everything is already dead at this rate.”
“By ‘we’ I assume you mean ‘me’?”
“I didn’t say that.”
“You didn’t have to.” I look at the top of my son's head, busy, absorbed.
“Do you realise I could say 'chocolate pudding' fifty time now and he wouldn't even blink an eye." We both look at the top of his head, whilst his fingers scratch away. Otherwise he doesn't so much as flinch, oblivious.
"Anyway. The window. How can we make it cooler in there?”
“How about the fan, the old one in the garage?”
“That will ruin my streamline look and anyway, then they’ll just all be in a hot desert wind, rather than a still desert.”
Junior pokes me in the leg with his cocktail stick. I check to see if this was experimentation, an accident or a request for attention? I can’t tell, so I carry on the conversation without paying him any more heed. He’s quiet, don’t lets rock the boat.
“I suppose. Do you keep the little side windows open?”
“I do, but there just no air flow.” Three well timed little pricks to the calf attract my attention, “yes, dear?”
“Pointy fings.”
“Yes it is pointy. Pointy and chartreuse coloured.” Spouse changes position on the counter and peers upwards, “we could always put some shade up. I could tape some cardboard up there.”
“Cardboard! Are you quiet mad? There again, that’s quite a good idea.”
“Really?”
“Yes, we could have some of those lovely pull down canopies that they have on shop windows.”
“You’re kidding right?”
“No really, I think that’s a brilliant solution.”
“Just for a few weeds,……er plants?”
“No, not at all. It will add to the value of the house, a sound investment.” Junior stabs my little toe with the cocktail stick, “pointy plants!” Really, the child can be so irritating sometimes. I hunker down to attend to the annoyance. “What are you doing dear? It hurts my toe when you poke it like that.”
“It does look rather like a chipolata,” my beloved spouse adds unnecessarily. Junior rolls back onto the floor to guffaw, “wiener!!!!!!!” I take advantage of the mutual hilarity between the males of the species, to drive the point home, “so I’ll give them a ring and make an appointment for them to come and measure up then.” It is a statement not a question, “that way we can fill the whole window with beautiful plants for the delight of everyone!”
Junior regains his composure, climbs up on the counter, to where the top glass shelf is located. He is above our eye line. He takes his green cocktail stick and uses it as a visual aid for his aged parents to announce his own solution, “pointy fing, wiv prickles is being dah cactus that is growing in dah desert. Now I have my chocolate dessert?”

The Basic principles of parenting

You only need to know one. The one principle that all parents need to know and apply is ‘consistency.’ It’s better for the parent, it’s perfect for the child. If the child happens to be autistic, then woe betide the parent that quibbles with the undoubted soundness of this GOLDEN rule. The parent of the autistic child must apply the same consistent rules to that child several thousands of times, preferably in the same manner to avoid confusion. [most probably of the parent] Should you, the parent, be tempted to deviate from this course, then you only have yourself to blame when the whole house of cards comes crashing down upon your head. I know more than a few parents have difficulty with this first and most basic of steps, but it behoves us all to heed these words well. There can be no back sliding, no namby pamby, weak willed spineless parenting styles.

I return home with renewed fortitude to conquer rather than tread water. I have envelops to push, campaigns to promote and the determination to follow through even if it kills me. Oh yes, there is nothing like a 7 minute emergency trip for milk at 7/11 [translation = almost the corner shop] to recharge a parent’s batteries.

I step inside just in time to catch the youngest speech delayed one as he scampers out of the bathroom, naked. Yes, naked again due in part to "tactile defensiveness," which in turn, is part of the "sensory integration" issue, because few things are simple or straight forward any more. This is a task, that we seem to have been working on forever. Apart from the speech delay, and the use of language, for current purposes it is a three part 'problem': "sequencing," [going through the same steps in the right order] "ideation," [being able to visualise the end result] and of course, my friend and yours, "task completion," [getting to the end.]

I hold him gently by the forearms, turn his body towards mine, find my cheerleader voice, pause, to ensure that I have his attention and say the same words that I have already said too many times to mention today, “clothes on dear!” He sighs as his body slumps, chin to chest, so that he is better able to gird his bare loins and growl. Suddenly his body snaps to attention, the soles of his feet stomp on the floor as he says, with rigid arms and spiked fingers, “ya know, you need to use dah different words! Dowz words are soooooo boring.” His chest pops out towards my chin, just enough to tip me over backwards onto my bottom. In this position I am better able to watch him depart, squealing, “run, run, run as fast as you can, you can’t catch me I’m the Gingerbread man!”

It's a shame that we can't use the American equivalent, but of course it doesn't rhyme. Nevermind either version is probably a good quote for a neophobic.

Questions of an existential nature

There are the big ones, like ‘why does autism exist?’ and then there are a whole host of other scientific issues, such as ‘how can a four foot square cushion disappear?’ although that is probably a physics question, or maybe a physical one. I think it’s a mathematical problem involving ‘cubic metres of child’[ren] versus volume of cushion, but weight to strength ratios would be a contributing factor or maybe a variable?

This is not some namby pamby lightweight fluffy American cushion. Oh no! This is a heavy duty, won’t dent if you punch it, dead body weight kind of a British cushion and probably pre-war although I can’t authenticate that.

If your pincher grip is fair, the average cushion can be picked up by a corner and tossed through a gentle arc to the sofa. Our version is more like a collection of house bricks with a fabric coating for the sake of appearance and about as comfortable too. It doubles as a step if you need to reach a high cupboard. A building contractor or body builder might be able to heave it up and lob it, but on impact it would kill the victim stone dead. Even if this were not true, it’s shear bulk means that you can’t stick it up your jumper and pretend to be pregnant.

We could be critical and list it’s many faults as a household item, but the main point is that this is not something that is easy to lose. You need to try very hard to lose it. If we ignore it’s deficiency of purpose, why would you want to lose it in the first place? Maybe the real question is ‘who’ would want to lose it, which in turn begs the question ‘who’ would be sufficiently motivated by ‘what’ to lose it?

This is a variation of what the experts tell us to do for determining the cause of meltdowns, the antecedent, and it’s a good one that I would highly recommend, it’s just that it’s not so easy to put into practice. This time I’m in luck. I find the cushion. It has a couple of Pokemon on it which tells me the ‘who.’ I find the ‘who’ so that I can enquire as to the ‘why.’

“What are the Pokemon doing on the cushionshttp://www2.blogger.com/img/gl.link.gif? Are they playing?” It is supposedly helpful to suggest an answer in the hope to trigger a response.
“No dey are not playing.”
“Oh. Having a little rest maybe?”
“No dey are not dah rest.”
“Asleep?”
“Not asleep.”
“O.k. You tell me, what are they doing?”
“Dey are camouflaging.” Are they really? Not bad. Good colour match, if a little obvious now he comes to mention it, easily picked off by a sniper. There again, it’s his brother that colour obsessed. Junior’s "visual acuity" is usually second to none.
“So they are!"
"It is camouflage like "Gecky."" Good follow up comment matey, and voluntary.
"Good job Pokemon, they blend in so well with the colours.”
“No stoopid! Dey are just being dah friends of dah dat one, Serviper.”
“Which one is Serviper?”
“Dah lickle guy dat looks like dah zig zag.”

Well, this is the planet that we exist on. Not everyone is as gifted as him at "pattern recognition."

Half full and slightly tarnished linings

The lizard, who fails to acknowledge his given name of "‘Gecky,’" is poised immobile. My pose should also be supine. I prop myself up on my elbows, nursing a mug of crunchy coffee to contemplate the day ahead. The day ahead has merged into the it’s neighbour, because one of my children has turned nocturnal. I wonder how the child that can sleep on his head, in a cupboard or drop to the ground at any time for a nap, has morphed into a waking creature, a very perky one at that?

Bed at 8, ‘up’ at 10 to tell us a secret, followed by hourly visits to impart vital or confidential information, has left us dazed. The ‘warning’ note to his teacher, will put her in a better coping position. If I had had a ‘warning’ note yesterday, I might have been in a better coping position myself. Perhaps I should have consulted the star’s alignment for guidance? I was certainly in a position to examine each and every constellation with frequency throughout the night. Gecky is still alive after 3 days in our household. I am uncertain if I will fare as well.

I don’t bother to check the calendar as I already know that I have a three hour appointment at the dentist in the morning and a three hour [plus] appointment at the school, for Junior’s IEP in the afternoon. It is hard to assess rationally, which will be more painful?

Several zillion jobs [translation = chores] scream at me, from the never ending and constantly expanding list of ‘things to do.’ I consciously ignore it on the counter behind me. Things to buy, things to fix and mend, to include the sprinkler system, which in turn requires speech from me on the telephone. Is there no end to the misery and torture of my current existence?


Since I will be seeing real people today, this means that I must dress accordingly and attempt ‘rational parent’ appearance. Do I possess any matching garments in my closet? Will I recognize anything that matches? Will I be able to gain entry to my theoretically ‘walk in’ closet? Would attendance wearing a dressing gown be to obvious? I wonder if the shower I had at 3:10 a.m. can ‘count’ for ‘today’? I fail to see how a shower at any time of the day or night will make me sound like a rational parent, when my speech is slurred by braces and my brain is slurried by sleep deprivation.

Since I am now an American, this means that if I am to present myself in public, I must be hairless. Do I have one of those things still? What is it called? Oh yes, a razor. Surely I must have one of those rusty old things hanging about somewhere?
Maybe I should just dip myself in a vat of "Immac" and be done with it?

Forget eugenics, I’m all for cloning: ‘Clone! Get thee hence forthwith to the IEP meeting, and don’t forget to take careful notes. Report back with ‘done deal.’’
I pull over the dish of ‘homework’ coins. I fumble. I pull out the pennies, discard the foreign rogues. I slip the former into a bag for the school charity drive. I recall that once upon a time, this was an easy exercise, swift and efficient. Did I ever "work in a Bank" or was that someone else? I cross off number 623 of the list as ‘done.’

Out of the window, I see the first rain drops plop onto the patio. [translation = deck] Typical! That’s all I need, a ‘fight’ with the tactile sensitive and the tactile immune, one with a ‘rain dance’ and another rolling in the puddles! Struggles with umbrellas, the armour of protection but a Rubic’s cube to open. I pout, or would do if my lips were not numb.

I attempt a crooked grin. I won’t have to water the garden tonight! Maybe I won’t hide in the closet under a pile of rags. So there’s no pot of gold, but I can still manufacture my own rainbows.

Weaning onto 'solid' food

I attempt friendly chit chat with a stiff upper lip to hide the cat’s cradle of elastic bands covering "my braces." As it turns out, this woman works at some health thigummy place and her husband has had jaw surgery. She commiserates with me about liquid food and stray fibres. She advises me of the importance of protein in my diet. I used to have a vague and random knowledge of the subject, but over the last few years and especially lately, such matters have dwindled in priority. Too stress the point, she reminds me that a lack of protein can have dire consequences for an otherwise healthy person. She leans forward to belabour the point, ‘yur hair il fall out in hand fulls!” I consider the tufts of grey hair that currently decorate my scalp.

I return home with renewed vigour to consume yet another chocolate shake with extra soy protein powder to clog up the braces and lure cavities.

I do not share my son’s need for perfection. The ‘that’ll do’ approach dominates. [translation = if in doubt, give up] For novelty’s sake, I decide to read the label and torture my brain with a little mathematical calculation. I determine that two ‘scoops’ of foul protein powder should be the new order of the day. The only problem with this plan is that I have mislaid the measuring scoop, or more truthfully, that "a certain lizard" of our acquaintance, has a greater need than mine. Now that it has been contaminated I am less inclined to retrieve it. I ‘guess,’ plop a couple of shovelfuls into the liquidizer and stab ‘on.’ Once the power has been cut, junior emerges from his hiding spot with his hands still over his ears, with a touch of "enthusiasm."

“You are have chocolate milkshake?” he beams rhetorically.
“I am.”
“It is cold?”
“Oh no, just room temperature, just the way you like it.”
“I do not like it.”
“I know.”
“You do not like it either I am finking.”
“You’re not wrong there matey.” I tip it into a tall glass, a glass glass because plastic tumblers that are mangled in a dish washer are foul. It takes a long time for the contents to empty, thick, foamy, glutenous. We look at it together.
“It is a liquid?” I don’t answer immediately as I try to work out the ‘right’ answer.
“I fink maybe you are going to be eating it.” Always better to let him answer his own questions, as it’s bound to save on a few meltdowns. “Maybe you are wanting a straw?” he seems to ask himself. I am delighted with this considerate consideration. “Perhaps, you are needing a spoon. You are needing a very small spoon?” he mentions in a dubious tone as we both contemplate braces, elastic bands and mouth hardware in general. We look at each other, pupils locked on pupils. I lift the glass and tilt it to my lips. The surface fails to yield. My glass is filled with a solid cylinder of milkshake. For the moment I would prefer to avoid the debate about what foods are "solid" to be eaten, and which are liquid, to be drunk.

“I know!" he pipes, "it is chocolate pudding, so I can be eating it for you!”
Oh good o, that solves that one then! He is such a solution orientated little guy. If there is a causal connection between "male pattern balding" and "neophobia," he may just have licked it! Or maybe, eaten it. It's enough to make your "hair" stand on end, if you have any. I assume that I am therefore destined to be the bald one of the family. At least I already have my "glasses" as a prop.

p.s.Yes, it is a ‘new food’ because it’s voluntary, it is a familiar food in a different form or at least it is if "neophobia" is in your household.

Dog eat Dog

The term 'non-verbal' often accompanies a diagnoses of autism. Just as autism is a spectrum disorder, the term 'non-verbal' covers a vast range of impairment. Some children do not speak at all, others are suspected of being an 'elective mute.' It is not a simple question of counting the number of single words a child 'can' speak. It is not particularly helpful to note that on 'average' a child may speak 6 words per day, especially if all those words arrive on the same day, to leave the rest of the week [or month] in silence.

It is difficult to tie cognitive abilities or measure an IQ by the complexity or simplicity of their vocabulary. For example if a child cannot say the word 'green' but can perfectly pronounce 'Corythosaurus,' what does that tell you? What if someone can verbally describe every train engine invented, differentiating each with precision, but is unable to name any foodstuff? These questions, and many like them, can torture a parent. Whilst a little knowledge may be a dangerous thing, greater knowledge often makes the questions you want to ask more confusing still.

As my boys become less non-verbal, I fixate on what they do say and what they leave out or avoid. My youngest is 18 months 'behind.' His older brother is two and a half years 'behind.' Their frustrations lessen as more words become available to them.

Maybe we're better off listening instead?

She displays her new ‘pet’ lizard with pride. The boys are initially dubious, but it’s difficult, if not impossible, to ignore her enthusiasm. She transfers the lizard from the watering can to a box. A great deal of discussion about reptiles ensues. Each child has a monologue on the subject. No-one listens to anyone else’s input. It’s like three visiting professors, each in their own soundproof box, pontificating.

“What dey are eat?” pipes up junior. I resist correcting his grammar as he has voluntarily asked an indirection question about food, a coup for the "neophobic." I want to say ‘flies and worms,’ but choose the safer vegetarian option of leaves, seeds and grains, because lizards know their food pyramid.

One person is motivated to name the pet. The boys see this as a pointless exercise and refuse any suggestion she makes. She lectures them about all the world’s little creatures which they eventually warm to. Her choices are ridiculed. The boys select names that either rhyme with lizard or start with the letter ‘l.’

The subject of ‘escape’ of the new pet, becomes the new topic, if not concern. Solutions abound. The necessity for ‘oxygen,’ is interjected by a fourth independent adult party. The information is received with shock. Yes, lizards breathe too. It is hard to reach a consensus of opinion. The options are, in no particular order of priority; a ring of mouse traps, a lid that is soft to prevent injury with holes to assist life duration, a cat to guard and keep it safe.

The fifth party adult, points out that cats are more than a bit partial to lizards. All are delighted to learn of the friendship between the cold blooded and the warm blooded. In the interests of clarity, a translator explained that by ‘partial’ their father means ‘eat.’ More shock and consternation rustles through the small audience, once the true nature of this pertinent but unwelcome fact, has been processed. The concept of "death" is always guaranteed to evoke a meltdown of catastrophic proportions in junior. I nibble my bottom lip and wait. Will he connect ‘lunch menu’ with "death of lizard?" That is certainly one particular fixation that I am careful to avoid reference to.

In this instance, a general denial filters through them. Clearly the information is false. Surely no right thinking cat would eat a lizard? Their father points out that cats, all cats in fact, are carnivores. Silence. Several people cogitate and process. The pampered pussy cats in our household eat dried food only, as recommended by their very expensive veterinarian. The poor deprived creatures have yet to even get a sniff of the tinned stuff.

The convention of youth continues in silent internal debate. Facts and evidence in support percolate. Junior voices an opinion on behalf of his siblings, “no, I sorry about it but you are being dah very stoopid person.” Both his parents delight at his polite but not deferential tone. “Our cats do not eat dah lizards, dey are being dah crunchivores.”

The Rampant Axe Murderer visits

“MUMMY!” he hollers. I scramble into the other room as his voice would indicate that someone has stabbed him with a lethal weapon. He is seated on a high stool playing his allotted 30 minute of Gamecube. My eyes check him over but there do not appear to be any lacerations, gaping wounds or gashes, nor any fountains of blood. His eyes are still glued to the screen as I enquire, “what is it dear!”
“’Emperor’ and ‘remember’ rhyme!” he yells at fifty decibels, his voice directed at the television screen. I look at the screen, “did you read that? Is that what the game is about? Are you stuck? Do you need an emperor or something?” I ask, beginning to ramble.
“No, nuffink like dat. I am just telling you fings. You are happy when I am telling you dah fings.”
I am? Is this what ‘happiness’ is supposed to feel like? Heart pounds, dry mouth, goldfish gasping, sweaty palms and racing mind, if not brain. Did I say that? Oh yes, that’s one of the things I’ve been saying for a few years now, reinforcing the occasional splinter of information offered, but nobody ever takes any notice. It would appear that his modulation and regulation are out of whack. [translation = his response is not appropriate, an over-reaction]

I attempt reinforcement, acknowledgment of his sterling efforts to put into practice what I have been preaching at him. "Well, thank you so much for telling me that," not the best word choice, but a positive hearty tone, accompanied by a shunned hug. Although he won't permit his attention to be distracted by a cuddle, he does manage the verbal, "yur welcum!"

It would appear that I need to recalibrate my own ‘alert’ system too. Is anyone really "normal?" If he is on a path to sharing information with me, in a voluntary manner, in a tone reminiscent of ‘duck and cover,’ I don’t know if my sensory will stand the strain. All this progress can be a bit much for some "feeble minded parents."

And there was me thinking that he was the hyper-vigilant one! Maybe I just need to tweak my 'fight or flight' response.

Traditional Irish Fayre

I e-mail my dear Irish pal in Ireland, to tell her about our day here in America. I am duty bound to assist her spouse, since he is an American. The poor man will have had to suffer the watered down version of Irish celebrations in Ireland and will have entirely missed out on the traditional version here, no Leprechaun traps for him. I don't tell her what such a trap entails. I leave that joyful task to her husband, to see if he has any luck translating that one. I hope to transport him back to his happy childhood and St. Patrick's Day school work sheets.

I explain how I have spent the morning toiling in the garden like an Irish navvy, spreading home made "compost" to the consternation of my children. Whilst I stood on the solid clay flower bed in a dust cloud with my fork, we seemed a long way from the rolling green hills. The nearest lawns are those belonging to the local MacDonalds, where verdant, manicured mounds tempt and confuse foreigners.



I send a picture of the children in their sparkly green bowler hats [smooth on the inside]. I don't mention how junior used his; rammed down over his face to squash his nostrils so that he was no attacked by odourous mulch. I tell her of his great triumph in placing an item on his head. I don't mention that the elastic chin strap had to be cut off.

I send her a link to a different site "GNM Parents" as a demonstration of my advancing techy skills, and proof that in the wee small hours, I attempt productivity. My attempts to reach out to the 'normal' population, those parents and children who will grow up and develop in the same generational time span as all of 'our' children. I need to win over that population, make autism less scary, not quite so weird, 'merely' a variation on a theme that they can tolerate, learn to live with, accept? My plan to conquer via humor is slow.

I hear back from her almost immediately via her Blackberry, stuck in some aeroplane en route to Japan. She and her family stopped off for Pizza [Ref 1] after a day out with the horses. But what else can you expect from a CEO of a high tech company, Irish or otherwise.

Three pairs of not particularly Irish eyes look in the same place at the same time on 'command!' [translation = shameless pleading and other psychologically damaging tricks]

[Ref 1] "Real Irish Italian pizza!"

"What I like about the people of Cork," John tells me as we devour the last crumbs, "is how punky they are. Look at what you're eating! It's not national cuisine, but it's not just fashionably international either. They've got the courage to sunder the rules here."

St. Patrick’s Day

What my children, don’t know about making Leprechaun Traps isn’t worth knowing. Their knowledge of other Irish trappings, or symbols has reached it’s zenith. The subject has been fully covered in each of their classrooms, interwoven into every lesson including occupational and speech therapy. Yup, around here, the subject has been licked. Since St. Patrick’s Day is not a school day this year I am saved the pain of trying to dress three children from head to foot in green. We have always failed in the green shoe department, so that is yet another couple of meltdowns that we have managed to skirt. I must admit to being ignorant about the 'mint' lure, but there always seems to be something new every year that I've missed.Yes, 'Green' Day has arrived. Senior is o.k. with 'green' just as long as you don't refer to it as green. He needs specifics; chatreuse, lime, neon. Junior shuns green as a secondary colour, currently not in favour. He is mollified by because 'golden' or yellow a primary colour is also king. We have pots of 'gold' cut out at great pains due to the torture of scissors on the fine motor skills, lined up with precision, accompanied by a lot of screaming since Scotch tape is the material from hell. There again he did help me hang to Shamrock decorations that adorn our home, held gingerly between thumb and forefinger in a squeamish pincher grip. He did drop them a few times because obviously holding paper is similar to holding a hot coal, but with persuasion he would try again.

I contemplate some kind of burger [meat] on the barbeque, whether that would increase my chances of success? Caramelized cabbage and onions instead of a dill pickle? Cucumber relish as our token green? I know that a baked potato would fly, but that would probably be literally thrown, depending upon how you define fly. Irish stew in the garden when the temperatures in the mid 70's doesn't sound that attractive to me either.


I chop parsley to throw into the Irish Stew, my mother’s not particularly authentic version. I peel some potatoes in case the Colcannon doesn’t fly and ensure that we have a full bottle of tomato sauce at the ready to disguise, if not drown the menu. I rinse the cabbage and tip it into the steamer. I debate the ultimate destination of each? There is a wide choice of options, between the floor, the compost bin or the garbage disposal unit. I blink hard and think positive = liquidize to make soup.

I regret that the tricks of yore with a different generation of children, fail so miserably with the current one:
“They’re strawberry flavoured crisps!”
“No, really, it is a Kangeroo burger.”
“The more green food you can eat the faster you’ll be able to run.” I feel quite wistful thinking how easy it all was once.
It’s a good thing really, that as a parent I have learned that ‘lies’ are not the best policy, even if it’s taken me a couple of decades to come to this realization.

We will don our sparkly green bowler hats, well everyone except junior of course, as his head is still strictly off limits. Since they have already had their classrooms destroyed by a plague of marauding leprechauns, I'm probably not obliged to repeat the exercise at home. Junior was not impressed with this social joke and needed a great deal of reassurance that we probably would not be similarly invaded at home.

All in all, I think maybe we got off quite likely by comparison with last year. We may not have advanced to St. Patrick's Day Parades, but a lot of people don't like crowds. Perhaps next year they might actually enjoy it, a bit of it, or a few bits. There is a watered down Irish gene in there somewhere, at the end of some rainbow or other, even if the pot of gold is made of scratchy paper.

Clueless

We sit at the table on the last spot of homework, a cross-word for the first grader. Rather than written clues, it has pictures. The last slot is blank. The icon depicts a bowl filled with some kind of liquid and a spoon. It begins with s and ends in p. It is a foodstuff that junior has never consumed. [nor likely to in the near future] I think that he is being awkward.

You would think after all this time, I would be more 'with it,' in the autism department. My learning curve in other areas of my life, is advancing, as evidenced by my ability to understand the humor in "my pal's posting." This is fun, this is progress. In theory it is evidence that despite my advancing years, you can teach an old dog new tricks. At the same time, when it comes to autism, I always feel that I am several step, if not leagues, behind.

His aversion to food ["neophobia"] often leads to difficulties. A long time back, when he was first evaluated, whenever a food item came up in the pictures, he refused to answer, would not say the word aloud. Due to his tactile defensiveness, he also refused to point to the correct answer because then his fingertip would come into contact with paper. It took a wee while to get over that particularly difficulty, until we rephrased the question from ‘which one of these do you eat?’ to ‘which one of these would your sister eat?’

I think we are experiencing the same issue with the homework.

For myself, following jaw surgery, I am so heartily sick of Cock-a-Leekie, Mullagatawny, split pea, puree etc., that I find my sense of humor is under strain.
“Lets think about it shall we? What did I have earlier today for a snack?”
“Er, you are having dah chocolate milk,” he drools in a breathy tone.
“Yes, but not that snack, that is a snack that you drink, this is a snack that you eat.”
“Oh.”
“Can you think of anything else perhaps? What did I have later, the thing that smelt bad?”
“Everyfink dat you eat is smelling bad except dah chocolate milk!” I seem to have mislaid my ‘thinking out of the box’ skills, and a small sigh escapes.
“How about I show you a tin of it?”
“You have some in a tin?”
“I do. I have lots of tins of it!” I nip out to the garage and return with an armful of tins to park in front of him on the table. “There you go. What are these?”
“Dey are cans. Cans is beginning wiv dah ‘c’ and is ending in dah ‘s’. Dat is bad. Dat is not dah right answer. I am a bad student. Mrs. Ko will be giving me dah bad grades because my brain is too tiny today!” He weeps and his head drops to his arms on the table. It’s frightening how quickly he can spiral down into despair. They are real tears.
“Not at all, you are very clever and a great student. Now how about we read the words on the can? Look!” He raises his heavy head and dewy eye lashes, "it is saying 'soup,' I already am knowing dat but it dah wrong answer.”
“No! It’s not, it’s the right answer, you knew it all the time, how clever you are.”
“What! What? What! ‘Soup’ is being dah right answer?”
“Yes dear! You’re right!”
He spits and stutters, bristles and sputters, “but, but, but ….you said it wuz for dah eating kind of food! You are dah idiot! Soup is dah liquid, so you are drinking it not eating!”

From Velcro to zipper

If I had known that bearing children would also mean investing in a truck load of Velcro, I would had bought shares in the company whilst they were still in vitro, but no-one warned me.

To be fair, not many people would have predicted this eventuality. Even now, one of my son's has a serious dose of tactile defensiveness and supersonic hearing. Those two qualities are firm indicators that would guarantee that Velcro, with it’s scratchy surfaces and noisy ripping sounds, would be banned.

However, as it turned out, it soon became the case that PECS with their Velcro backing, ruled the world, or our little corner of it. As long as I didn’t rip them off willy nilly, just kept them on the board, all would be well. Rearranging PECS, adding new ones, removing out moded ones, became a clandestine activity for me. During the wee small hours when everyone slumbered, I would lurk in the kitchen, setting up the PEC board for the next day.

Velcro exists in other areas too, such as shoe closures, an essential tool for any child who has yet to graduate to shoe laces. This is a common enough issue for most young people, but if your fine motor skills are a bit dodgy, it could be a number of years until you can master this feat. Since zips are also a bilateral nightmare boys often transition to them via a Vecro fly in their trousers.

I suspect that most parents feel that raising Frederick or Gemina, is more of a marathon than a sprint. They look forward to the distant time when their child becomes independent and no longer their responsibility. Some older parents and grandparents, also know that the ‘responsibility’ does not end until they themselves are pushing up the daisies, and probably not even then. Whilst I rant and rave about my children’s capabilities and shortcomings, not infrequently, I have cause to note that the ‘spectrum’ is just that, a range of [?]………..possibilites.


We attended the charity bash [translation = benefit] a uniquely American experience, for "Parents Helping Parents [PHP]" Since we are in California, people were dressed accordingly, casual, which includes shoes and shirt, as well as a considerable number of posh frocks. [ translation = fancy dresses] For the purpose of clarity, I should point out that no-one was in costume. [translation = fancy dress] The parents of special needs children enjoyed the company of like minded people, if they had baby sitters. Everyone looks "'normal'" but you can never really tell can you?

The bidding process started for some very worthy prize in the auction after dinner. I continued to chat to my pal in quiet tones. The wine had flowed and there was a great deal of hub bub. My hands operated in conjunction, to help me get my message across. A rogue alien hand, rested on my arm to warn me “careful! Someone will think that you’re bidding with all that waving around.” My hands dropped to my lap, as I wouldn’t wish to be mid-understood.

I nipped out to the loo at an opportune moment. Down the far end of the corridor [translation = hall] a middle aged man knelt on the carpet in front of a teenage boy. The men's restroom was close by. As I went closer, the hub bub of the banqueting hall subsided and his words become audible, “you’re doing a great job, almost there, you can do it. Pull it up a little bit more. If you hold it in your right hand it will be easier. Left hand holds the fabric. Yeah you’re almost there, just a little bit more. Here let me hold the top, that buckle is in the way huh?”

He stood up and hugged him. He talked to the boy’s shoulder as I brushed past, “you’re the greatest guy, do you know that?”

You see what you want to see.

p.s. "Parents Helping Parents [PHP]" is a fabulous organisation that was started by a couple of mums with special needs kids, at their kitchen table.

Tie yourself up in knots

We concentrate on homework, at least I concentrate on their homework, but they appear to be singularly distracted. Whislt children sit at the table not doing homework, two cats hurtle around the house chasing each other’s tails as well as their own. I drag his attention back to the number of horses in the math problem, or more particularly the number of legs that they collectively own. It is a poorly designed question leading us up blind alleys regarding animal welfare.
“Why they are gallop? Er no, er canter or maybe it is trot?” His fingers tap on the box of snack bars, a visual reminder of the reward to come.
“Why is who, er what dear?”
“Dey! Dey! Why dey are do dat?” His fingers tear at the corner of the box as this child is not averse to the texture of paper.
“Who is doing what dear?”
“Dah cats?” He continues to tap, twiddle and tear, whilst his legs swing and pump under the table.
“Oh! Why are they all crazy dashing about the place?”
“Yes, why dey are dash?”
“Spring fever I suspect.” Giggles and wriggles are contagious.
“No. Spring is on March 21. Today we are March 12.” I examine his face for a hint of humor or sarcasm. None. The fig bars fall out of the box and his hands are all over them.
“You’re right dear! But they certainly are very frisky for this time of the day.” They are all infected with fidgets.
“You’re right! Dat is because day are nocturnal.” I check again. His face is dead pan. Soon those fig bars will be crumbs.
“You’re right dear! They are generally nocturnal. Now, back to the question. How many legs to the horses have?”
“Horses, dey are not nocturnal.” His body is revving up, a pile of wriggling worms, something is on it’s way.
“You’re right dear. Now. Horses. Legs. How many?”
“My homework is finished?”
“Nope, not yet. Here, I’ll give you a clue, it’s an even number because each horse has four legs.”


“Hey! I know! Dis horse walked into a bar,” he explodes with uproarious laughter and tumbles off his chair, as do the other two. I peek under the table, lifting the cloth. Three children roll on the floor together beneath their unfinished homework. So much for neural pathways. "Autism Schmatism," I’m with Granny on this one.

Ursaphobia - whatever next!

[translation = Bear Phobia]
I stagger to the help desk lugging two over sized bags of library books, with the two that ‘won’t scan’ tucked under my arm. The librarian peers over the brim of her bifocals at me. I return the favour. I read the question that she has formulated in her mind but is too polite to voice; ‘she’s never gonna read those in a week! Whose is she tryin to kid?’

Each week I zip into the library and hurl a random selection of books into bags, check them out and zap back to the car with a seven day supply of bribes to remain at the dining room table, or distractions from the horror of what’s on the dining room table depending upon your viewpoint.[translation = food]

She’s right of course, I won't read them all. I will attempt to read them all, but there will be a significant percentage of the books that will fail to meet requirements with one or more persons. Obviously I avoid all books that have teddy bears on them as that is guaranteed, even now, after all these years to strain my son’s powers of tolerance. Whilst there is always the possibility that a teddy may lurk within the pages, at least it’s not there bare faced on the cover, to taunt and torture him.

Now I know what you’re thinking – ‘what has she been doing all this time? How old is that child now? 7? Seven and a half, and she’s still not managed to diminish the bear phobia?’ As usual you are absolutely right, but I’ve been trying to desensitize someone else to other things, not necessarily more important things but more encompassing things, like weather, food and temperatures. In the great scheme of things, the latter are more difficult to avoid, whereas teddy bears aren’t quite so all pervasive.


There again, perhaps you fall into the other camp and think – ‘oh please! Seven and a half and he’s afraid of bears! Get over yourself why don’t you!’ Yet again, I have rumblings like that myself, but it’s a question of degree. I know that his reaction to them is not proportional or rational. It would help if I had some inkling as to what he objects to so strongly, but I don’t. I have given due time and attention to the matter, but what with the speech delay, I’m no further forwarder.

As a result, I’ve just equated it to my own dislike of "clowns." If I have to admit to "Coulrophobia" a fear or rather an innate dislike of clowns, I'm not really in a position to cast aspersions at others. I can’t tell you quite why I don’t like them, but there it is. It’s not as if he doesn’t know a great deal about bears, real ones. Grizzlies, Black, Brown and Polar, as well as more obscure species such as the Spectacled bear, our particular favourite, he has no qualms about. Nope, it’s just the Teddy bear variety of bear that he finds so excruciating.

You would think that friendly little chaps like "Winnie the Pooh" would be exempt from this prejudice, but no.



Once home, I turn my attention to a few other trifles; facial expression being top on the list. Social interactions run a close second. Whilst the kiddie winkies are at school I start some serious in depth research on the outstanding matter. The fear of bears shouldn't really be a social impediment in suburban California, but where autism is concerned, anything goes. For now it whizzes it's way to the top of the list.

I have always been particularly partial to teddy bears myself. I recall a very special bear, a lemon yellow one with golden velvet ears and paws. It was sent from Hamley's by my grandmother to my baby brother, all the way to South Africa. My mother would religiously prop the bear up inside his cot. As soon as she left the room, he would fling it out unceremoniously. The bear became mine my default. Perhaps I should consult him? He might have some insight that I lack? There again, I felt so mortified at having acquired the bear by his failure to recognise that jewel of a bear, that when we returned home to England by sea, I spend my paultry savings on a singularly small and unattractive bear, to give to him by way of compensation. Jumbo Jet Tea Bags, as the bear became known, was cared for with great zeal, until he was threadbare and even less attractive than when he left the boutique.

"Watch out for dem bears!"
"See the bear."
But I'll start another campaign to address the issue of this "phobia" pretty soon. Afterall, if we're trying to 'fix' food, water and temperatures, what's one more phobia thrown into the mix?